hi all,I have started a blog http://outofstress.blogspot.com which explains about stress relief , weightloss,obesity ,constipation,cancer prevention etc...In...
Hey Amy, I'm Julia and i'm 17 and currently a sewnior in High School. i was diagonsed with EDS type 3 two years ago. I really understand what your daughter...
Hey, I'm Julia and i have EDS type 3 and a variety of all disebilities (Fibromyaglia, RSD, etc. etc.) As you can tell by my email (hobbleon) i am injured often...
... Julia, I don't know of any EDS scholarships, but there are several scholarship opportunities for people with disabilities. www.fastweb.com is a good ...
Yes, I live in Des Moines. I am trying to locate professionals in the area that don't look at me as a freak when I say Ehler Danlos. Do you see any in the...
I live about 2.5 hours from Des Moines, in a small town in Northeast Iowa. My doctor is Dr. Michael Brooks in Cedar Rapids. He's the one that diagnosed me....
Hi! ... We actually saw Dr. Willing in Des Moines, simply because it was the earliest appointment we could get. She actually works mostly out of Iowa City at...
This four step guide will give you the foundation you always wanted. Learning the basics in handling stocks. This guide will help anyone, interested in getting...
I was wondering where I can get some CD's on EDS and as much information as I can on it. I have several Doctors that are working with Micah and myself now and...
Kathrine, Sorry we are from Michigan, I can't ever find anyone here with the same thing either! But if you need a friend I am here. I have 3 kids and all...
Hi Katherine, I have EDS-3. I live in Chanhassen, MN and am a senior in High School. How old is your daughter? Julia H. Katherine <hipsfish@...> wrote:...
Hi I originally posted last July after being diagnosed by a Rheumatologist. I have seen an expert on EDS from Philadelphia who says I don't have EDS because I...
Hi Sandi, do you get things like head ache's constant body pain or neck problems??? I do a ton of searching constantly and I have a few ideas but I need more...
Angie, Thanks so much for replying. I am in the healthcare field here in New Jersey I work with many neurologists and I am an MRI tech so if there is...
Hi, all, especially Sandi, Your case pretty much mirrors mine. They diagnosed me in pretty much the same way. To rule out heart anurisms they did a scan of...
Hi Sandi, Very interesting! I have had a horrible day sorry. You know it is one of those days when you need a friend and nobody is home. Well we got kind...
Angie, My heart goes out to you and your children. I am so sorry that when you finally got the answers to your questions that it is something so serious....
Hi Sandi and Angie, I have been following your e-mails back and forth and just want to jump in and say hello and how sorry I am for the news you have just ...
Hi Sandi, Thank you. But we see only the best of the best neurolgist here at Detroit. We actually see a genetic neurologist. Yeah there is such a thing....
Hi Linda thank you! Yes most certianly I will take a look at any info! I am sorry to hear about your friends newborn. I was diagnoised with diabetes at age...
Hi I was wondering if anyone has had Carpal tunnel surgery. I have been seeing an orthopedist who feels that my wrists are the only thing wrong with me. I...
Hi Angie. I am so glad that you found a Dr. that you are comfortable with. I think that is half the battle. I am not familiar with mitochondrial dx is that...
Hi, I had carpal tunnel surgery in 1999. I could not hold a gallon of milk, my hand would just lock up and I dropped it in the middle of my kitchen! Fun!...
Before you consider surgery for CTS, read this: http://www.uggen.net/mike/writing/conditions/cts.htm Make sure you do the Phalen's test yourself and be SURE it...
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