Hi, I'm a 29 year old female with Classic II and have not really contacted a doctor about my EDS since I was a teenager. I'm just trying to find out if...
HI Cindy, Thanks for responding. My main concern is for my daughter who is 7 months old. Do you have children? If so, when were signs noticed? I have taken...
Hi Carla, Yes I have 5 boys. My youngest now 19 was the first in the family to get the DX. Some of the older boys are just now starting to show a few signs....
Hi everyone. I just joined and wanted to say hello to everyone. I was dx'd with EDS type III with hypermobility in 2001. Always looking for ways to cope with...
Hi everyone, I am writing about my 8yr old son, 3 years ago he was dx with Systemic onset juvenile rheumatiod arthritis and is on a lot of medications for this...
Welcome, Eve! ... I was dx'd with Hypermobile EDS (HEDS - aka type III) in 1992. I now live in Seattle, WA with my husband who also has HEDS. Barbara Davis ...
Helen, Are you anywhere near the Baltimore, MD area? The NIH is doing research on all of these connective tissue disorders. The lead researcher on the ...
Gosh Helen............... Sounds like you have your hands full & one delightful little boy. I admire your spirit. If you can get to Baltimore Maryand, the are...
Hi my name is Latishia, I'm 27 and I have EDS just not sure which type yet, they are still testing to figure it out. Not sure what else to put here, oh yeah I...
Pain Info/Advocacy and Conference Materials Available There are a limited number of Conference materials available For those of you who were unable to attend...
Hi Everyone, We are already working on the Fall-Winter 2006 issue of EDS Today. The featured topic in the fall will be Accessible Housing. We are seeking ...
http://www.disabilitysecrets.com/ Quote from the URL: TIPS SECRETS ADVICE TO WIN SOCIAL SECURITY DISABILITY (SSDI, SSD) & SSI BENEFITS The purpose of this site...
I saw this in Training and Conditioning magazine last week. It claims to be able to help reduce shoulder subluxes in 93% of users. Has anyone tried this? ...
Can you please do an article for kids who would like to go to college and can not afford it. My daughter had so many surgeries and complications in her...
We did an issue on school accommodations the very first issue. You can read it online at www.edstoday.org. Go to Newsletters, click Past Issues, and select...
I have no real expierence in the getting college paid for but I do know being on the low income side that certian places especially in a case like yours you...
thank you, but I guess I have looked into everything we can. I know a friend of her has diabetes and he got a full ride to college because of his disability....
Hi again, Have you actually tried McDonalds? I am also diabetic. I have had it since I was two years old. My heart goes out to you and your daughter and her...
RE: Paying for college Try Dept of Vocational Rehab. Also try www.fastweb.com to look up scholarship options. RE: Brain issues ... I just was dx'd with Chiari...
My daughter was having sever headaches and they thought she was having seizures.. they never really told me.. what the final out come was.. I dont think they...
Thank you for trying to help. all three of my kids trip ALL the time but I have always thought it was due to bad vision. :-) My oldest daughter has horrible...
they never said, my daughter just said she would betanding talking to friends and then she would fall and 9 times out of ten she would break a bone. Now she...
I would encourage you to look into testing for Arnold Chiari Malformation and Postural Orthostatic Tachycardia Syndrome (POTS). EDS is linked to both of...
This four step guide will give you the foundation you always wanted. Learning the basics in handling stocks. This guide will help anyone, interested in getting...
Donna, ... I sent your request to the board of EDS Today. Bonnie Heintskill wrote an excellent article on this topic for the current issue which will mail out...
Hi guys! I could use some guidance. My daughter (6) was diagnosed with HEDS last December. The OT's were already working with her weekly at school, which they...
I feel like a pro when it comes to special ed. I have two children in it as of now. My son has been in special ed since he was 6 months old and could not...
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