Hi Sandi, As a woman with EDS and as a mom of a 13 year old boy, I think I understand how you feel and your confusion. I worry about you and your boy. Doctors...
frist sorry for the spelling. i am 23 and have a beatiful daughter. she is not showing any sings of have eds (thank god). it was heard growing up with no one...
Hi Sheena, I'm Cindy We have either type Classical or 3. The docs don't seem to agree. I don't have much pain, but my 18 year old son is having it really bad...
... I don't have much pain, but my 18 year old son is having it really bad for 4 years now. He is homebound. He hasn't gone to school in almost 4 years due...
From: smjbr04 To: ehlersdanlossupportclub@yahoogroups.com .... i was told at 12 then i got the difenate from gene tests when i was 20. when i was told that i...
From: Sheena Watlington how many mutates do you know of? **************** I'm sorry, I don't know what your asking. Can you ask it again? Cindy [Non-text...
Hello! I'm new here, my daughter (5) was just diagnosed a couple of days before Christmas with EDS suspected Hypermobility type. She's been having all kinds of...
like how i am the only one in my family. i am a classic type mutated. i have signs of the other types of eds. do you know of any one else like that. ... ...
amy, it is hard to say what is to high impact. my docters told me i could do things but no sports unless it was swimming and that is the best thing any way. as...
From: Sheena Watlington like how i am the only one in my family. i am a classic type mutated. i have signs of the other types of eds. do you know of any one...
Hi Amy, I am Sheenas mother,Valeri. Sheena is 23 now. I wish I had fought for her more with her teachers. They always told me she had learning problems. That...
Your welcome Sheena. Ask anything, anytime. :~) Don't worry about the miss spelled words or typing errors, we'll all get through it. The important thing is...
I have been diagnosed with eds but have yet to find out what type. I have done alot of research and am pretty scared of what the final out come is going to be,...
Anne, have they done further tests to help diagnose which type? My doc ran some on me just to rule out some of the symptoms. Mine is pretty much the...
This message is about Human beings, Democracy, UNHCR, Refugees, The Iraqis, Islam, Kurds, Human rights, Respect, Money, Donations, Angelina Jolie, Pavarotti,...
trisomy18_suppo3@...
Feb 2, 2006 9:20 pm
396
Hi Everyone, We are already working on the Spring-Summer 2006 issue of EDS Today. The featured topic in the fall will be Birth Control Methods and EDS. We are ...
Oxycontin: The Good, The Bad, The Deadly http://www.channel3000.com/health/7013912/detail.html WISC - Madison,WI,USA ... Taking three 30-milligram OxyContin...
Hi Everyone, We are working on the 2006 issues of EDS Today. The featured topic in the Spring issue is Birth Control Methods and EDS. We are seeking articles...
Hi ALL!!! Is anyone from outside of the U.S.A. planning to or thinking about coming to the awesome conference in Houston, Texas, jin July 2006. Please see...
Does anyone know of college scholarships for my duaghter. She is a senior this year and we were told that she should be elegible for one because of her ehlers...
Check www.fastweb.com for scholarship information. There are scholarships for people with disabilities listed there as well as many others she might qualify...
... I don't remember it being that way when I applied. You don't have to be on disability/SSDI to qualify for scholarships based on having a disability. There...
... A disability can be proven by a letter from a doctor. If your child has a diagnosis of EDS, the doctor can write a letter stating the diagnosis for the...
Have any Canadians gone out of country for diagnosis/treatment of their medical conditions or surgery? How was this arranged with their provincial insurance? ...
hi all ,I have started a site http://www.outofstress.com which deals all aspects of stress and recovery.Our objective is to help peoplethose who are suffering...
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