I'm new here. I'm 21 I have EDS (skin condition) looking for others like me I guess. I currently live in Virginia but I call Florida home. I'm the last member...
The Ehlers-Danlos National Foundation has created a brand new glossy publication called the Medical Reference Guide. The goal is to distribute this brochure to...
Hi, Katherine, I've just been diagnosed, too. I've been searching the web for information. Being a "rare" disease, the information is somewhat limited, but...
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
Hi, I am trying to find out all the info I can about this syndrome. My daugther is 9 and was just diagnosed a week ago with EDS Hypermobility. They feel she...
Note: forwarded message attached. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection...
Hello! Get a quick glance of Healthcare News and Resources here http://www.allinonedirectory.info/HealthUpdate/ Take care, Kate ... Start your day with Yahoo!...
Dear Friends: In March, Congresswoman Judy Biggert (R-Ill.) introduced a bill that would protect you and your family from genetic discrimination in health...
http://www.personalizedmedicinecoalition.org/emedia/email/invite_090705.htm New discoveries in the Genome Era are changing the face of science, medicine and...
Shelby, I am sorry no one welcomed you to the group. Please remember that everyone here is dealing with their own health issues and not everyone has time to...
Hi Shelby and Kitten, Welcome, I'm happy you made contact with the Ehler-Danlos group. However, I don't think there is much activity in the Yahoo group that...
hello/ my name is Olga. i am living in belarus. i am 19 years old. i have symptoms that can be ehlers-danlos type 6. i am really looking for good friends and...
Kitten
OK.77@...
Aug 6, 2005 12:38 pm
344
hi this is shelby the new member to ur group and i just want to let u know that i am very upset w/ ur support group. i am a teen seeking help advice anything...
hi my name is Shelby, i am a teen, i was diagnosed with ehlers disease a few years ago. i am very interested in hearing the different information and research...
OK, so I am horrible with responding to emails, and I do a somewhat decent job with keeping up with this forum, but I do rather well with IM, since I can just...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
