My 14 yr.old son has been suffering from joint pain and swelling since July. He has been on everything and his lab workup is normal. He happened to need IV...
I am dealing with the same problems. I also just got off antibiotics and it has worked the exact same way as your son. I was taking Viox before they pulled...
I am finally home and somewhat recovered from traveling to the NIH last week for the Connective Tissue study. I am cross-posting this to several email lists...
I am 31 year old. My whole life has been full of dislocations, extreme bone pain.. and well you know the rest! I was alway told, "it's growing pains, you're a...
Welcome to the group! I'm a fellow former "hypochondriac" (in other's opinion) that went through the same things that you have just written about. I was...
www.ednf.org is full of support and information, chat and message boards; we've found this to be a great resource. They will also list support groups by area....
HI all. Thank you for all of your responses to my email. I was recently playing online and came across a magazine called EDS today. It cost 10 dollars for a...
Well, I am the editor, so if you feel comfortable taking my word, I can tell you it is legit. EDS Today is a 501(c)3 non-profit organization established in...
absolutely a good investment alygail111a <alygail111a@...> wrote: HI all. Thank you for all of your responses to my email. I was recently playing online...
Last month at the NIH, Dr. McDonnell warned me about protecting my extremely hypermobile neck. I'm looking into neck protection methods for the Brace Yourself...
hello all...my name is sonie...i am 29 yrs old..i have 7 children..12 yr old twins..a 7 yr old..a 6 yr old,and 2 yr old triplets...my daughter and i were...
Hi Everyone, We are already working on the Spring-Summer 2005 issue of EDS Today. The featured topic in the fall will be Pregnancy and EDS. We are seeking ...
hi all.....just wanted everyone to know that abbis eye surgery is tomorrow at 1:50...hve to be at childrens hospital at 10:50......please say prayers for her...
I am looking for any information about EDS type 1 and complications from cataract surgery,Thanks,Mike Dean [Non-text portions of this message have been...
EDS Today is proud to offer an Ehlers-Danlos Syndrome Awareness Bracelet in partnership with Expressions of Hope. The bracelet is designed using sterling...
Hey I was wondering if anyone had come up with and EDS awarness braclet like the "Live Stong" braclets? I know they have been coming out with those support ...
... Abby, There aren't any of the rubber-style bracelets at this time. There is only the beaded bracelet. Other awareness products will be coming at a later ...
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