I'm 52 been diagnosed for alittle over two years.  My father died of a dissected
aorta.  We didn't know he had EDS until two years ago.  You sound alot like me. 
I have had 14 + operations for weird joint things.  E-mail me at
shunter@.... if you want to talk.

-----Original Message-----
From: Merry Fetterolf [mailto:fetterolfmer@...]
Sent: Tuesday, November 09, 2004 11:41 AM
To: ehlersdanlossupportclub@yahoogroups.com
Subject: Re: [Ehlers Danlos Support Club] EDS


Hello I am glad to be a part of this group!!!
I guess my biggest question is how do we deal with this joint pain.

I take anti inflammorty and they dont work

I have alot of problems with scar tissue inside my body.  Last May I had back
surgery for what they thought was a herniated disc.  What was wrong was massive
scar tissue had grown around my nerve root and caused me to fall alot and to
also walk with a cane.  When the surgery was done the doctor had said, "He had
never saw anything like that"
I got that scar tissue from ONE shot in my back, that I received last year.  I
had over the years 14 operations for weird stuff and no one ever told me that I
could have connective tissue dissorder.  We didn't make the connection, until my
mother last Feb collasped due to a dissected arota.  She is in the hospital now
because of a removal of a abscess that grew in her belly.   Does this sound
familar to anyone???

My need right now is to talk to people that are going thru this same thing. 
Thanks for listening.
Merry


---------------------------------
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[Non-text portions of this message have been removed]

Hello I am glad to be a part of this group!!!
I guess my biggest question is how do we deal with this joint pain.

I take anti inflammorty and they dont work

I have alot of problems with scar tissue inside my body.  Last May I had back
surgery for what they thought was a herniated disc.  What was wrong was massive
scar tissue had grown around my nerve root and caused me to fall alot and to
also walk with a cane.  When the surgery was done the doctor had said, "He had
never saw anything like that"
I got that scar tissue from ONE shot in my back, that I received last year.  I
had over the years 14 operations for weird stuff and no one ever told me that I
could have connective tissue dissorder.  We didn't make the connection, until my
mother last Feb collasped due to a dissected arota.  She is in the hospital now
because of a removal of a abscess that grew in her belly.   Does this sound
familar to anyone???

My need right now is to talk to people that are going thru this same thing. 
Thanks for listening.
Merry


---------------------------------
Do you Yahoo!?
  Check out the new Yahoo! Front Page. www.yahoo.com

[Non-text portions of this message have been removed]

Welcome to the group, Merry.

What sorts of questions do you have?

ar

On Tue, 09 Nov 2004 04:27:39 -0000, "Merry Fetterolf"
<fetterolfmer@...> said:
>
> Hi my name is Merry and I am from Harrisburg, Pa...I was just
> diagonsed today with EDS at John Hopkins.  We saw a genetic's
> doctor
> all day long today.  It is a relief to get a name.  Gee there is
> something wrong with our family.  Wheew!  Thought we were nuts.
> Anyways I need to talk with people that are living
> this....talking
> to doctors is one thing, but to talk to people that are going
> thru
> this is the main thing in my eyes.  I am looking forward to
> meeting
> u all and learning all that we need to learn to deal with this
> painfull problem.  I am 43 years old and I have been suffering
> for
> at least 19 years.  Talk to you all soon
>
> Yahoo! Groups Sponsor
> ADVERTISEMENT
> [1]click here
>   ___________________________________________________________
>
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>   * To visit your group on the web, go to:
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>
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>     of Service.
>
> References
>
> 1.
>
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th/S=1705094714:HM/EXP=1100060861/A=2128215/R=0/SIG=10se96mf6/*http://companion.\
yahoo.com
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> mailto:ehlersdanlossupportclub-unsubscribe@yahoogroups.com?subject=Unsubscribe
> 4. http://docs.yahoo.com/info/terms/
--
   Arlyn Grant
   arlynsg@...

Hi my name is Merry and I am from Harrisburg, Pa...I was just
diagonsed today with EDS at John Hopkins.  We saw a genetic's doctor
all day long today.  It is a relief to get a name.  Gee there is
something wrong with our family.  Wheew!  Thought we were nuts.
Anyways I need to talk with people that are living this....talking
to doctors is one thing, but to talk to people that are going thru
this is the main thing in my eyes.  I am looking forward to meeting
u all and learning all that we need to learn to deal with this
painfull problem.  I am 43 years old and I have been suffering for
at least 19 years.  Talk to you all soon

I am new to knowing there is a group but not to EDS. I have had type
III and problems with pain. Now in my 50's.  My two oldest sons had
to wear casts and braces to straighten their feet as they were
curled up when they were born.  My daughter had double hernias when
she was born and then her arms and shoulder dislocated often until
she was eight or nine.  So now I am trying to explain to my doc why
I always hurt and finding the info on EDS will help.  Thankfully,
she believes me and lets me send her research.   It is helpful to
know other people deal with this.  K.

I'd like to let everyone know that if u fancied a change ive set up a
support group for young people (young at heart count too) lol. the
address is


http://groups.yahoo.com/EDSYoungPeopleSupport

so pop along and join up

just for the benefit of the creater of this site - im not leaving the
site, just fancied a change! - not dissing urs :)

luv
han
***************

Hey guys, I am new to the group and just wanted to say hi!

If you would like to check out a pic of me I took yesterday, or talk to me check
my profile our over here: http://www.datebywebcam.com/profiles_bubiboo.php.

Thanks guys, I look forward to getting to know you all!

-----------------------------------
Dating By Webcam Works For Me
Find Your Match http://www.datebywebcam.com/search/
It's Fun and Free! Bubiboo...


[Non-text portions of this message have been removed]

Countdown to the finale of the Hillback Challenge----- Original
Message -----
From: Sharon F. Terry
To: info@...
Sent: Sunday, October 31, 2004 9:01 PM
Subject: Countdown to the finale of the Hillback Challenge


Dear Friend,

It is that happy month of November - when we look forward to the eating, the
family, the days off at the end of November.  And Thanksgiving also marks
the end of the Hillback challenge.

Elliott Hillback, treasurer of the Genetic Alliance Board of Directors, and
Vice President of Genzyme, challenged the Genetic Alliance to raise
$50,000 - the Hillback Family Foundation will match it 50 cents on the
dollar - $25,000 by Thanksgiving - November 25.

How are we doing?  We have raised $14,465 - that leaves $35,535 to go.  This
translates to $17,767.50 still in Elliott's pocket - and he desperately
wants to give us this money!

Please, please, donate whatever you can - remember that $10 toward this
challenge gets us a $5 match from Elliott (why do I feel like a public radio
fundraiser?)!

Of the funds raised so far, 38 individuals, 9 advocacy organizations and 3
companies have donated.

Individuals:
Think about the incredible voice we are for all those living with genetic
conditions - donate in honor of one of them, or in honor of a loved one -
we'll acknowledge it appropriately.

Advocacy organizations:
I know that more than 9 of you care about what we are doing - and that we
are doing our work to increase the capacity of advocacy groups - that leaves
591 of our organizational members that can send something - if each of you
sent $50 (remember that we have no dues) we'd raise almost $30,000!!!  We
know you know how hard it is to fundraise these days - and you know that we
turn this money around and do things for you!  Check out the new website -
particularly the Interactive Guide
(http://www.geneticalliance.org/ws_display.asp?filter=tools_interactive_guide)
  - we are here for you!!!  Please donate before the deadline - then we can
do more for you!

Companies:
We are grateful for your partnership on many levels - please help us reach
this goal - or relieve Elliott of his money!

Thanks all - I am completely confident that we can do this - and the faster
we do the more time I can spend in policy work, helping our organizations
and working toward more resources for research and services!  And, let's
honor Elliott's generosity by taking complete advantage of it - he would
want nothing less!

You can either mail us a check, fax or call in your complete credit card
information, or use our online donation form:
http://www.geneticalliance.org/ws_display.asp?filter=about_donate

All donations are tax deductible.  If you are donating to the CFC (#7295)
and want it to count toward this campaign just let us know your total!

Very best,

Sharon

*************
Sharon Terry, MA

President & CEO
Genetic Alliance
4301 Connecticut Avenue, NW
Suite 404
Washington, DC  20008-2369
Voice: 202-966-5557 x213
Fax: 202-966-8553
Email: sterry@...
Web: http://www.geneticalliance.org
   ---

Will the list owner/moderator of this list PLEASE do something about
the constant porn spamming of the list?

If not, I suggest that members relocate to a list that is run by a
moderator who will block spammers.  There are many other EDS lists.
http://www.edstoday.org/support/internet.htm

I finally figured out how to add the webcam to my homepage profile, I guess I am
stupid for taking that long! Visit my homepage and see it! And then send me
comments if you wish on the chat! I love to talk to people online, I hope to
meet mr. right one day...

http://www.tantrasweet.com/kristin_luv22/

Ok, looking forward to chat with you all. ;)

PS, here is a screenshot (is that the right word?) from the webcam.


Hugs & kisses!!
kristin_luv22


[Non-text portions of this message have been removed]

hi, my name is tanya and i am 25 years old almost new to group (i post here two
day ago). I just thought to say hi again, still i search for good man to become
love partner. i am from russia, now living in usa and liking it very much!

if you want to visit my page on the world wide web you can click the link below!
i have profile there with webcam camera window and yahoo aim and it is open to
you to see free off course!

http://www.tantrasweet.com/tanya/

interests; i like dating, try to find good man for love, books about russia and
usa, drinking, computer games, talking with people on chat and webcam

see you! ehlersdanlossupportclub group is favorite!




Love,
Tanya


[Non-text portions of this message have been removed]

I'm glad you finally got diagnosed, the waiting is the worst right?
What type do you have, or if you dont know, what are your symptoms,
the only reason i ask is that i seem to be the only one with the
symptoms i have, or the only one with this combination of symptoms
anyway, and im trying to find out if its possible to be all of the
classifications. Hope to hear from you soon. Your email address
wouldn't work, so if u like, email me and i can reply to you.

sausages123@...

Thanks alot

Han *******

hi, my name is tanya and i am 25 years old new to group. I just thought to say
hi, i am from russia, now living in usa and liking it very much!

if you want to visit my page on the world wide web you can click the link below!
i have profile there with webcam camera window and yahoo aim and it is open to
you to see free off course!

http://www.tantrasweet.com/tanya/

interests; i like dating, try to find good man for love, books about russia and
usa, drinking, computer games, talking with people on chat and webcam

see you! ehlersdanlossupportclub group is favorite!




Love,
Tanya


[Non-text portions of this message have been removed]

hi, my name is tanya and i am 25 years old new to group. I just thought to say
hi, i am from russia, now living in usa and liking it very much!

if you want to visit my page on the world wide web you can click the link below!
i have profile there with webcam camera window and yahoo aim and it is open to
you to see free off course!

http://www.tantrasweet.com/tanya/

interests; i like dating, try to find good man for love, books about russia and
usa, drinking, computer games, talking with people on chat and webcam

see you! ehlersdanlossupportclub group is favorite!




Love,
Tanya


[Non-text portions of this message have been removed]

Hi Hannah,
      My name is Sandi.  I'm 52 years old and was just diagnosed 2 years ago, but
I have been suffering for along time not knowing what was wrong with me.

      Please feel free to contact me direct if you want to just talk.  I'm a good
listener.
shunter@....



-----Original Message-----
From: Hannah [mailto:sausages123@...]
Sent: Wednesday, October 27, 2004 11:18 AM
To: ehlersdanlossupportclub@yahoogroups.com
Subject: [Ehlers Danlos Support Club] Hello



Hi there,
          My name is Hannah, i am a 19year old student living in Wales
in the uk. I was diagnosed with EDS when i was about 15. I was
diagnosed by a osteopathy consultant, who knew nothing about it, and
just said "dont worry we've figured out what you have - its Ehler
Danlos syndrome" Ive done all my own research and come to the
conclusion that i have EDS, but the type i'm not 100% sure of, i seem
to have symptoms from all over. Until i was about 16 i was very
interested in EDS, and did alot of investigation, seeing MANY MANY
MANY doctors and consultants, i also contacted the Mayo Clinic in the
US. However when i went to college, my EDS was embarassing, causing
alot of problems - so i basically tried to forget about it, i didnt
take any of my tablets, i wore heavy make up and sun glasses and
stopped visiting my online support groups. However a year ago i was
invloved in a car crash and my EDS has been aggrivating me ever
since, today i went to see a physiotherapist for my accident
compensation claim, and he explained that i ne4ed to do things for my
EDS before anything will improve. As i said i am not sure what type i
have, and even though it is thought that my mum has it, she does not
suffer like i do, i feel like i have no one to talk to that
understands what i'm going through, and although everyone is very
supportive, and i have the same friends and boyfriend that i had when
i was diagnosed - i feel that i cant explain things to them the way i
should be able to.

So that is me, i hope that someone reads this, and reply's with some
hope.

Thanks again

Hannah
**********





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[Non-text portions of this message have been removed]

Hi there,
          My name is Hannah, i am a 19year old student living in Wales
in the uk. I was diagnosed with EDS when i was about 15. I was
diagnosed by a osteopathy consultant, who knew nothing about it, and
just said "dont worry we've figured out what you have - its Ehler
Danlos syndrome" Ive done all my own research and come to the
conclusion that i have EDS, but the type i'm not 100% sure of, i seem
to have symptoms from all over. Until i was about 16 i was very
interested in EDS, and did alot of investigation, seeing MANY MANY
MANY doctors and consultants, i also contacted the Mayo Clinic in the
US. However when i went to college, my EDS was embarassing, causing
alot of problems - so i basically tried to forget about it, i didnt
take any of my tablets, i wore heavy make up and sun glasses and
stopped visiting my online support groups. However a year ago i was
invloved in a car crash and my EDS has been aggrivating me ever
since, today i went to see a physiotherapist for my accident
compensation claim, and he explained that i ne4ed to do things for my
EDS before anything will improve. As i said i am not sure what type i
have, and even though it is thought that my mum has it, she does not
suffer like i do, i feel like i have no one to talk to that
understands what i'm going through, and although everyone is very
supportive, and i have the same friends and boyfriend that i had when
i was diagnosed - i feel that i cant explain things to them the way i
should be able to.

So that is me, i hope that someone reads this, and reply's with some
hope.

Thanks again

Hannah
**********

Hey guys! I don't want to be a nuisance, but I have to tell you that I finally
got my webcam repaired! So now I am on full view again like usually! Also the
shop that sold me the webcam gave me better software along with the repair, so
now I can also chat real time with people who watch the cam! ;) Come try it out
on my homepage, but be nice to me ok?

http://www.amateurhope.com/TureAngel/


[Non-text portions of this message have been removed]

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[Non-text portions of this message have been removed]

Yeah, health insurance can be such a pain.  It is why I haven't pursued
a formal diagnosis.  Of course, it hasn't helped much as I still can't
seem to get insurance...

ar

On Tue, 19 Oct 2004 16:24:33 -0400, "Terry Hackett (Webical.com)"
<thackett@...> said:
>
> Wow, sounds tough!  My story isn't nearly as bad, at least not
> yet.  Never though about the health care implications, yikes!
> More later, maybe, at work now and gotta go.
> Thanks again for the reply,
> Terry
--
   Arlyn Grant
   arlynsg@...

Wow, sounds tough!  My story isn't nearly as bad, at least not yet.  Never
though about the health care implications, yikes!

More later, maybe, at work now and gotta go.

Thanks again for the reply,

Terry
   ----- Original Message -----
   From: Sandi Hunter
   To: ehlersdanlossupportclub@yahoogroups.com
   Sent: Tuesday, October 19, 2004 2:53 PM
   Subject: RE: [Ehlers Danlos Support Club] Newbie says hello


   Well it's a long story.......I'll try and make it short.....( so please excuse
the typos)
   .
   My knees started dislocating when I was 5 years old and they would go
completely out of joint and I would have to hit them and pop them back in.  This
went on and I would go to the Dr. and they kept saying "she will grow out of
this"  Well I was a senior in high school (way back when) when I had my first
knee operation.  And then another the next year and that seemed to fix the
knees.  I'm a very active person, I showed horses, racquet ball, swimming,
tennis, etc. etc. until my elbow started hurting and they said it was tennis
elbow so did surgery for that.  Then my shoulder degenerated into my clavicle
bone (for no reasons) and then surgery for that.  Still no mention of EDS.  Then
I had to have a '"Tummy Tuck" because I lost all my  stomach muscles (I was only
40 years old and had 1 child and wasn't over weight)  But when they operated
they said I looked like an 80 year old women that was overweigh and had had ! 10
kids.  (thank you very much).  Still no motion.  I was wondering at this point
what is wrong with me.  Then off we went to have to have a brow lift and eyelid
surgery because I lost 75% of my vision because my muscles gave out in my
forehead.  Still no mention as to what is going one.  Well about then I had had
ENOUGH and went to my family Dr. and said I wasn't leaving until he opened up
his medical book and tried to figure way a otherwise perfectly healthy women was
having so much problems with soft tissue/joints.  He came up with EDS and sent
me off to Baptist Hospital in Winston Salem to a genetic consular and she
confirmed that I had EDS.  After further review they then reviewed my 65 year
old fathers autopsy report and found that he had died of a dissecting aorta and
they were sure that he had the Vascular and joint EDS.  Since I have been
diagnosed I have had two more knee surgeries and a tendon transfer in my ankle
and I'm! in paint all the time.  But I have lived with it th! is long what's a
little longer.

   The only thing I regret...is getting FORMALLY  diagnosed because now long term
health care is PRICED OUT OF SIGHT FOR ME.  And some won't even consider me.

   As far as treatment......once they figure out what type you have...by the way
do you know that?  If you have what I have I can help you out.



   -----Original Message-----
   From: Terry Hackett (Webical.com) [mailto:thackett@...]
   Sent: Tuesday, October 19, 2004 2:15 PM
   To: ehlersdanlossupportclub@yahoogroups.com
   Subject: Re: [Ehlers Danlos Support Club] Newbie says hello


   How exactly did you get diagnosed?  My ortho, at the time, just started
wiggling and poking more and more things and said, sort of off-hand, "Did you
know you have Ehlers-Danlos?".  I've never had any more 'official' diagnosis,
but from what I've read, and the problems I'm having, it all makes sense.

   Also, now that  you've been diagnosed, is there anything different you can do
about the problems, or is treatment still more or less the same?

   Thanks for replying,

   Terry
     ----- Original Message -----
     From: Sandi Hunter
     To: ehlersdanlossupportclub@yahoogroups.com
     Sent: Tuesday, October 19, 2004 12:27 PM
     Subject: RE: [Ehlers Danlos Support Club] Newbie says hello


     Hi Terry,
     Sound like my situation.  I am 52 in a couple of weeks and I was diagnosed
at 50 after 14 different ortho surgeries.  I kept telling the Drs that something
had to be wrong with me... I was just too healthy to be having all these things
go wrong with my joints.

     I'm out here if you need to chat.
     Sandi Hunter
     shunter@...


     -----Original Message-----
     From: Terry [mailto:thackett@...]
     Sent: Tuesday, October 19, 2004 11:13 AM
     To: ehlersdanlossupportclub@yahoogroups.com
     Subject: [Ehlers Danlos Support Club] Newbie says hello



     Hi,

     I'm a 46-y.o. male, just joined.  I was diagnosed with EDS a few
     years ago on a visit to an ortho, but never thought much of it.  Now
     an assortment of joint and soft-tissue injuries and ailments have
     mounted up to the point where I have a lot of discomfort and I'm
     seeking more info and any treatment options.

     I need to catch up on some reading first, it looks like.

     Cheers to all,

     Terry





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[Non-text portions of this message have been removed]

Well it's a long story.......I'll try and make it short.....( so please excuse
the typos)
.
My knees started dislocating when I was 5 years old and they would go completely
out of joint and I would have to hit them and pop them back in.  This went on
and I would go to the Dr. and they kept saying "she will grow out of this"  Well
I was a senior in high school (way back when) when I had my first knee
operation.  And then another the next year and that seemed to fix the knees. 
I'm a very active person, I showed horses, racquet ball, swimming, tennis, etc.
etc. until my elbow started hurting and they said it was tennis elbow so did
surgery for that.  Then my shoulder degenerated into my clavicle bone (for no
reasons) and then surgery for that.  Still no mention of EDS.  Then I had to
have a '"Tummy Tuck" because I lost all my  stomach muscles (I was only 40 years
old and had 1 child and wasn't over weight)  But when they operated they said I
looked like an 80 year old women that was overweigh and had had 10 kids.  (thank
you very much).  Still no motion.  I was wondering at this point what is wrong
with me.  Then off we went to have to have a brow lift and eyelid surgery
because I lost 75% of my vision because my muscles gave out in my forehead. 
Still no mention as to what is going one.  Well about then I had had ENOUGH and
went to my family Dr. and said I wasn't leaving until he opened up his medical
book and tried to figure way a otherwise perfectly healthy women was having so
much problems with soft tissue/joints.  He came up with EDS and sent me off to
Baptist Hospital in Winston Salem to a genetic consular and she confirmed that I
had EDS.  After further review they then reviewed my 65 year old fathers autopsy
report and found that he had died of a dissecting aorta and they were sure that
he had the Vascular and joint EDS.  Since I have been diagnosed I have had two
more knee surgeries and a tendon transfer in my ankle and I'm in paint all the
time.  But I have lived with it this long what's a little longer.

The only thing I regret...is getting FORMALLY  diagnosed because now long term
health care is PRICED OUT OF SIGHT FOR ME.  And some won't even consider me.

As far as treatment......once they figure out what type you have...by the way do
you know that?  If you have what I have I can help you out.



-----Original Message-----
From: Terry Hackett (Webical.com) [mailto:thackett@...]
Sent: Tuesday, October 19, 2004 2:15 PM
To: ehlersdanlossupportclub@yahoogroups.com
Subject: Re: [Ehlers Danlos Support Club] Newbie says hello


How exactly did you get diagnosed?  My ortho, at the time, just started wiggling
and poking more and more things and said, sort of off-hand, "Did you know you
have Ehlers-Danlos?".  I've never had any more 'official' diagnosis, but from
what I've read, and the problems I'm having, it all makes sense.

Also, now that  you've been diagnosed, is there anything different you can do
about the problems, or is treatment still more or less the same?

Thanks for replying,

Terry
   ----- Original Message -----
   From: Sandi Hunter
   To: ehlersdanlossupportclub@yahoogroups.com
   Sent: Tuesday, October 19, 2004 12:27 PM
   Subject: RE: [Ehlers Danlos Support Club] Newbie says hello


   Hi Terry,
   Sound like my situation.  I am 52 in a couple of weeks and I was diagnosed at
50 after 14 different ortho surgeries.  I kept telling the Drs that something
had to be wrong with me... I was just too healthy to be having all these things
go wrong with my joints.

   I'm out here if you need to chat.
   Sandi Hunter
   shunter@...


   -----Original Message-----
   From: Terry [mailto:thackett@...]
   Sent: Tuesday, October 19, 2004 11:13 AM
   To: ehlersdanlossupportclub@yahoogroups.com
   Subject: [Ehlers Danlos Support Club] Newbie says hello



   Hi,

   I'm a 46-y.o. male, just joined.  I was diagnosed with EDS a few
   years ago on a visit to an ortho, but never thought much of it.  Now
   an assortment of joint and soft-tissue injuries and ailments have
   mounted up to the point where I have a lot of discomfort and I'm
   seeking more info and any treatment options.

   I need to catch up on some reading first, it looks like.

   Cheers to all,

   Terry





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[Non-text portions of this message have been removed]

How exactly did you get diagnosed?  My ortho, at the time, just started wiggling
and poking more and more things and said, sort of off-hand, "Did you know you
have Ehlers-Danlos?".  I've never had any more 'official' diagnosis, but from
what I've read, and the problems I'm having, it all makes sense.

Also, now that  you've been diagnosed, is there anything different you can do
about the problems, or is treatment still more or less the same?

Thanks for replying,

Terry
   ----- Original Message -----
   From: Sandi Hunter
   To: ehlersdanlossupportclub@yahoogroups.com
   Sent: Tuesday, October 19, 2004 12:27 PM
   Subject: RE: [Ehlers Danlos Support Club] Newbie says hello


   Hi Terry,
   Sound like my situation.  I am 52 in a couple of weeks and I was diagnosed at
50 after 14 different ortho surgeries.  I kept telling the Drs that something
had to be wrong with me... I was just too healthy to be having all these things
go wrong with my joints.

   I'm out here if you need to chat.
   Sandi Hunter
   shunter@...


   -----Original Message-----
   From: Terry [mailto:thackett@...]
   Sent: Tuesday, October 19, 2004 11:13 AM
   To: ehlersdanlossupportclub@yahoogroups.com
   Subject: [Ehlers Danlos Support Club] Newbie says hello



   Hi,

   I'm a 46-y.o. male, just joined.  I was diagnosed with EDS a few
   years ago on a visit to an ortho, but never thought much of it.  Now
   an assortment of joint and soft-tissue injuries and ailments have
   mounted up to the point where I have a lot of discomfort and I'm
   seeking more info and any treatment options.

   I need to catch up on some reading first, it looks like.

   Cheers to all,

   Terry





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ardbank.com/hcs/hcsapplication?pf=PLApply&media=EMYHNL40F21004SS> click here
    
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[Non-text portions of this message have been removed]

Hi Terry,
Sound like my situation.  I am 52 in a couple of weeks and I was diagnosed at 50
after 14 different ortho surgeries.  I kept telling the Drs that something had
to be wrong with me... I was just too healthy to be having all these things go
wrong with my joints.

I'm out here if you need to chat.
Sandi Hunter
shunter@...


-----Original Message-----
From: Terry [mailto:thackett@...]
Sent: Tuesday, October 19, 2004 11:13 AM
To: ehlersdanlossupportclub@yahoogroups.com
Subject: [Ehlers Danlos Support Club] Newbie says hello



Hi,

I'm a 46-y.o. male, just joined.  I was diagnosed with EDS a few
years ago on a visit to an ortho, but never thought much of it.  Now
an assortment of joint and soft-tissue injuries and ailments have
mounted up to the point where I have a lot of discomfort and I'm
seeking more info and any treatment options.

I need to catch up on some reading first, it looks like.

Cheers to all,

Terry





Yahoo! Groups Sponsor

ADVERTISEMENT
 
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lth/S=1705094714:HM/EXP=1098285210/A=2372354/R=0/SIG=12id813k2/*https://www.orch\
ardbank.com/hcs/hcsapplication?pf=PLApply&media=EMYHNL40F21004SS> click here
  
<http://us.adserver.yahoo.com/l?M=315388.5500238.6578046.3001176/D=grphealth/S=:\
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[Non-text portions of this message have been removed]

Hi,

I'm a 46-y.o. male, just joined.  I was diagnosed with EDS a few
years ago on a visit to an ortho, but never thought much of it.  Now
an assortment of joint and soft-tissue injuries and ailments have
mounted up to the point where I have a lot of discomfort and I'm
seeking more info and any treatment options.

I need to catch up on some reading first, it looks like.

Cheers to all,

Terry

I don't think this is one you want .
-----Original Message-----
From: eiffel9549@... [mailto:eiffel9549@...]
Sent: Tuesday, October 19, 2004 2:23 AM
To: Subject: [Ehlers Danlos Support Club] I'm bored and on my cam. (19 Fem Pic)
Someone talk to me...


Come into my chatroom and introduce yourself.

http://www.orgyindex.com/bubiboo/


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[Non-text portions of this message have been removed]

Come into my chatroom and introduce yourself.

http://www.orgyindex.com/bubiboo/

It's nice to be here and I look forward to getting to know all of you better.

If you want to see my pic go to: http://www.orgyindex.com/bubiboo/

This isn't what should be here!

-----O[Sandi Hunter]  riginal Message-----
From: eiffel9549@... [mailto:eiffel9549@...]
Sent: Tuesday, October 12, 2004 6:49 PM
To: ehlersdanlossupportclub@yahoogroups.com
Subject: [Ehlers Danlos Support Club] 18 female new to group (PICS for those
interested)


Hi everyone, just though I would introduce myself. I'm looking forward to the
discussions here.

Oh yeah, my pics are at: http://www.geocities.com/a_sweet_bi_girl18/


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ardbank.com/hcs/hcsapplication?pf=PLApply&media=EMYHNL40F21004SS> click here
  
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[Non-text portions of this message have been removed]

Hi everyone, just though I would introduce myself. I'm looking forward to the
discussions here.

Oh yeah, my pics are at: http://www.geocities.com/a_sweet_bi_girl18/

Hope to get to know you all. I will try to contribute to the discussion with my
thoughts, knowledge, and opinions.