Countdown to the finale of the Hillback Challenge----- Original Message ----- From: Sharon F. Terry To: info@... Sent: Sunday, October 31, 2004 9:01...
Hey guys, I am new to the group and just wanted to say hi! If you would like to check out a pic of me I took yesterday, or talk to me check my profile our over...
Bubiboo
eiffel9549@...
Nov 3, 2004 7:29 am
271
I'd like to let everyone know that if u fancied a change ive set up a support group for young people (young at heart count too) lol. the address is ...
I am new to knowing there is a group but not to EDS. I have had type III and problems with pain. Now in my 50's. My two oldest sons had to wear casts and...
Hi my name is Merry and I am from Harrisburg, Pa...I was just diagonsed today with EDS at John Hopkins. We saw a genetic's doctor all day long today. It is a...
Hello I am glad to be a part of this group!!! I guess my biggest question is how do we deal with this joint pain. I take anti inflammorty and they dont work I...
I'm 52 been diagnosed for alittle over two years. My father died of a dissected aorta. We didn't know he had EDS until two years ago. You sound alot like...
Wow thats great yes would love to talk to you....sorry about your father. Have u ever heard of anyone that has fallen organs?? This happens to my sister. She...
Haven't had to deal with that problem yet. Did have an early hysterectomy at 30 but at that time I didn't know what I had so who knows if that was a problem....
I would be interested to find out more about "diet to one that promotes detox to keep my soft tissue happy". Regards , Terry ... From: Arlyn Grant To:...
Hi Terry, Our bodies store toxins in our soft tissues so in order to have good tissue health, you need to detox and eat a healthy diet. I eat a diet high in...
Hi, I'm Michelle and 35 years old. I recently went for an MRI for neck and shoulder pain. I was given my records back from when I had numerous major knee...
Michelle, People with EDS are discouraged from having surgery unless it's absolutely necessary because EDS puts you at risk for complications. People can have...
Hey people! I am pretty new to the group and I don't mean to be annoying, but I wanted to let all of you know I finally got my webcam back. It took a while to...
WetnWaitin18
eiffel9549@...
Nov 12, 2004 8:48 pm
285
Michelle, I have eds type 3 and my neck is totally disentergrated. The specialist I have has heard of Eds and knows about it, he refuses to operate on my neck...
Hey, I have EDS type III and it has given me a hard time with just about all of my joints... at this point I find my self dislocating something atleast once a...
I didn't know anything about Bankart Lesions, but you email prompted me to search for info because I think my left shoulder is dislocating a lot these days. I...
Sure sounds like your shoulder is dislocating!!!! Have you been diagnosed with EDS? If so what type?! It can play a major role in joint dislocation! I have...
Hey I cant seem to find the site that you made, but I think its a great Idea and I am in full suport! If you could lemme know how to get there that would be...
Countdown to the finale of the Hillback Challenge ... Dear Friend, It is that happy month of November - when we look forward to the eating, the family, the...
conscslght, I was diagnosed with the Hypermobility Syndrome in 2001. I read about EDS that day on the Internet, but dismissed it after seeing stuff that said...
mcastle21, I know what you mean about the formal diagnosis, but the problem is I was diagnosed when I was 10 years old so the entire process, as I do regret...
Hey people! I am pretty new to the group and I don't mean to be annoying, but I wanted to let all of you know I finally got my webcam back. It took a while to...
WetnWaitin18
eiffel9549@...
Nov 17, 2004 9:07 am
294
So when is the best time to get on for the Chat room, b/c I have never seen another person in there?!! ^ ^...
EDS Today is proud to announce a new page on our website. The Assistive Services page is a listing of resources for people in need. The page includes links...
Google Alert for: Ehlers Danlos Medical marijuana proposed again http://www.lacrossetribune.com/articles/2004/11/30/news/02marijuana30.txt Lacrossetribune.com...
My 14 yr.old son has been suffering from joint pain and swelling since July. He has been on everything and his lab workup is normal. He happened to need IV...
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