Just a quick announcement to let you know the latest issue of EDS Today has gone to press. This issue is our biggest one ever - 60 pages of articles and...
Hi, I'm a 46-y.o. male, just joined. I was diagnosed with EDS a few years ago on a visit to an ortho, but never thought much of it. Now an assortment of...
Hi Terry, Sound like my situation. I am 52 in a couple of weeks and I was diagnosed at 50 after 14 different ortho surgeries. I kept telling the Drs that...
How exactly did you get diagnosed? My ortho, at the time, just started wiggling and poking more and more things and said, sort of off-hand, "Did you know you...
Well it's a long story.......I'll try and make it short.....( so please excuse the typos) . My knees started dislocating when I was 5 years old and they would...
Wow, sounds tough! My story isn't nearly as bad, at least not yet. Never though about the health care implications, yikes! More later, maybe, at work now and...
Yeah, health insurance can be such a pain. It is why I haven't pursued a formal diagnosis. Of course, it hasn't helped much as I still can't seem to get...
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40KilosLighter
eiffel9549@...
Oct 22, 2004 3:04 am
260
Hey guys! I don't want to be a nuisance, but I have to tell you that I finally got my webcam repaired! So now I am on full view again like usually! Also the...
TureAngel
eiffel9549@...
Oct 24, 2004 9:54 am
261
Hi there, My name is Hannah, i am a 19year old student living in Wales in the uk. I was diagnosed with EDS when i was about 15. I was diagnosed by a osteopathy...
Hi Hannah, My name is Sandi. I'm 52 years old and was just diagnosed 2 years ago, but I have been suffering for along time not knowing what was wrong with me....
hi, my name is tanya and i am 25 years old new to group. I just thought to say hi, i am from russia, now living in usa and liking it very much! if you want to...
Tanya Tchaikovsky
eiffel9549@...
Oct 27, 2004 11:10 pm
264
hi, my name is tanya and i am 25 years old new to group. I just thought to say hi, i am from russia, now living in usa and liking it very much! if you want to...
Tanya Tchaikovsky
eiffel9549@...
Oct 28, 2004 6:24 am
265
I'm glad you finally got diagnosed, the waiting is the worst right? What type do you have, or if you dont know, what are your symptoms, the only reason i ask...
hi, my name is tanya and i am 25 years old almost new to group (i post here two day ago). I just thought to say hi again, still i search for good man to become...
Tanya Tchaikovsky
eiffel9549@...
Oct 30, 2004 6:25 am
267
I finally figured out how to add the webcam to my homepage profile, I guess I am stupid for taking that long! Visit my homepage and see it! And then send me...
kristin_luv22
eiffel9549@...
Oct 31, 2004 4:22 am
268
Will the list owner/moderator of this list PLEASE do something about the constant porn spamming of the list? If not, I suggest that members relocate to a list...
Countdown to the finale of the Hillback Challenge----- Original Message ----- From: Sharon F. Terry To: info@... Sent: Sunday, October 31, 2004 9:01...
Hey guys, I am new to the group and just wanted to say hi! If you would like to check out a pic of me I took yesterday, or talk to me check my profile our over...
Bubiboo
eiffel9549@...
Nov 3, 2004 7:29 am
271
I'd like to let everyone know that if u fancied a change ive set up a support group for young people (young at heart count too) lol. the address is ...
I am new to knowing there is a group but not to EDS. I have had type III and problems with pain. Now in my 50's. My two oldest sons had to wear casts and...
Hi my name is Merry and I am from Harrisburg, Pa...I was just diagonsed today with EDS at John Hopkins. We saw a genetic's doctor all day long today. It is a...
Hello I am glad to be a part of this group!!! I guess my biggest question is how do we deal with this joint pain. I take anti inflammorty and they dont work I...