My youngest son was diagnossed with EDS last year. We are dealing with it. We also found out that my oldest son probably has it too. My Doc never did any tests...
Hello All, My name is Brenda. I live in the Saginaw area of Michigan. My two sons, sister,neice, brother, father and Great Grandmother, as well as Uncle and...
EHLERS-DANLOS NATIONAL FOUNDATION - BALTIMORE GROUP You are cordially invited to attend the next quarterly meeting in Virginia Towers, 500 Virginia Avenue,...
Jim, I'm not in the military either, but wanted to pass along some other places for you to ask for personal experiences and help. http://www.ednf.org -...
Hi Everyone, We are already working on the Fall-Winter 2004 issue of EDS Today. The featured topic in the fall will be Driving and EDS. We are seeking articles...
I have found out that I am going to need surgery on my back in the near future. I am nervous about it. My Dad didn't survive his surgery 20+ years ago. I'm new...
Hi Grace I had back surgery 2 years ago to correct my scoliosis. I had 2, 17 inch rods put in my spine. I have an unknown type of EDS I have had many Dr's...
Thank you so much for the info. I'm not sure what type of EDS my two sons and I have. My youngest was tested because of his enlarged aorta. The tests they did...
I just got back from a surgeon about my back. They said they found a "void" in my spine down in the lower lumbar area. This Doctor that I saw today is one of...
Grace, The Ehlers-Danlos National Foundation offers a complimentary membership for anyone who has EDS, but can't afford the dues. Meaning they won't charge...
Grace, You can also join the CEDA email list. It has over 400 members with EDS and it is free to join. http://health.groups.yahoo.com/group/ceda/ -Barb...
Google News Alert for: Hypermobility ARTICULAR Hypermobility Protects Against Hand Osteoarthritis Medscape (subscription) - USA July 7, 2004 â?" Articular...
For Immediate Release July 21, 2004 Genetic Alliance Backs ³Open Access² to NIH-Funded Medical Research Disease and Patient Advocates ³Must be the Bridge to...
... meet with anyone in our area on that day from 2pm til .... including a light meal to either take with you or have at the church. We will gather at Grace ...
The WCD, the world's leading disability event, is committed to improving the lives of those with disabilities, their families and caregivers, physicians, ...
... http://seattletimes.nwsource.com/html/artsentertainment/2001995758_breewalker04.html ... nowhere inside a large weather-beaten vehicle, the childhood taunt...
I have been asked to find people with EDS and Osteoporosis to correspond with/answer questions for another off-list EDSer with Osteoporosis. If you have both...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the ehlersdanlossupportclub group. File :...
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