Hannah,<br>What type of EDS have you been diagnosed with?<br>I would be glad to talk with you some weekday evening. It would have to be after 8:30pm because we...
hi rae<br>i really want to be able to talk to someone with EDS, so far i havent spoken to any one, i need to be able to talk, nd my doctor and physio are ...
Well its great to be able to post again.<br>Phone lines got fixed. AMEN!!!<br>I saw wonderful eds explanation of classifications. It says you can have symptoms...
Hannah I am responding to your email. Hang in there you will make it fine. I have eds type 3 but have other signs of eds. Mothers take a kid with eds tough. ...
Ann I am in a similar position with the geneticist I saw last December not knowing whether I have Hypermobile of Vascular EDS as I demonstrate symptoms from ...
hi.....i was beginning to think everyone had given up on the club because no one hda posted for so long! :) but luckyley not!<br>This week has been horrible...
Hello,<br>Sorry it took me so long to post but have been getting ready to move and when the new lines were hooked up at the new place the lines were bad and ...
I haven't posted in the club before now. My name is Jen and I have EDS although whether Hypermobile or Vascular Type hasn't been decided yet. I started a...
i know this is a long time after and maybe too lte, but i hve type 3, the hypermobility type and i know where u cn find pictures, go to yahoo search and type...
Heya, <br> im hannah, im a 15/f/wales and have just been diagnose with EDS, type 3. Im really confused and would like to talk to someone. thanx, oh, and i...
Hi Stephanie,<br>Welcome to the club.<br>Our disease is so rare that a lot of people like myself and family are not diagnosed with it until later in ...
My name is Stefanie and I'm 17. I was born with EDS hypermobility but didn't suffer from the pain of it until I was 12. I have tried pain medications but they...
Well, it looks like spring finally made it here.<br>I hope the sun and warm weather will help all our aches and painful joints. Been working out in the yard ...
Husband was using computer again last night to compare air fares. Sometimes he uses my e-mail address instead of his.<br>Sorry about your PT. Hope the new ...
Rae,<br><br>You caught me smack dab in the middle of a bad case of the flu. Why don't you let me know whats best for you day or evening?<br>Good to hear from...
Hello all,<br>I was wondering lets set up a chat time and chat. How about it, love to chat with you. What day and time is good for you? Leave a message and let...
Racey,<br><br>Tried to e-mail you tonite but computer told me your address had one to many commas. Please write to me again with address.<br>Thanks,<br>Ann...
Hello Racey,<br><br>Have had problems with the computer since coming back from my vacation. Got the old one fixed and up and running. Hope the faster newer one...
There are some pictures on the national EDS foundation web site.<br>Other than that we don't give out personal info unless a member wishes to do so.<br>Ann...
Does anyone have pictures from the Ehlers-Danlos Syndrom (Hypermobility Type)? I need some to write an article for our school-newspaper. If anyone knows where...
Hello Racey and welcome to the club. I have been gone on a short vacation and was so pleased to see we had a new member.<br>EDS is rather rare and is not ...
Hello there to all I am a new member of this group and look forward to chatting with you. Like to be able to send messages or chat with someone who also has...
Hello,<br><br>This club is for those who have Ehlers-Danlos syndrome, a connective tissue disease that is inherited. It affects joints, ligaments, aorta,...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
