There is a book, sold on Amazon.com that I recommend you take with you to court. It is about EDS, told in the voice of those who have it. I have the book,...
The book you are referring to is "Ehlers-Danlos Syndrome: Medical and Practical Information" by SignQuest Publishers. EDS Today has an Amazon bookstore on our...
Did your EDS diagnosis affect your decision whether or not to have children? 0 I had children before I was diagnosed. 0 I chose to have children despite my...
There are two questions on the HealthlinkUSA newsletter of interest to EDSers. Please use the links to respond to the questions. Posting an answer to the...
Doctor-Patient Communication Survey The following survey is designed to find out how people with EDS view communications with their doctor. The results will...
I also need control group participants who do not have EDS. Please share the survey with anyone you know without EDS, just ask them to let me know if they are...
... Please use the link above to reply to this message. scoliosis surgery Posted by Luke Fraley on 1/28/2004, 1:24 pm 24.151.81.247 I am 19 with Type I EDS. I...
... To: Barbara Uggen-Davis Sent: Thursday, February 05, 2004 1:15 PM Subject: info from yahoo on spam just received this from another list I'm on: Please pass...
I just spoke to a woman on the phone who asked me to ask the lists the following question. She has both EDS and Postural Orthostatic Tachycardia Syndrome...
... From: "mcastle21" <mcastle21@...> To: <hypermobility@yahoogroups.com> Sent: Saturday, February 28, 2004 4:09 PM Subject: [hypermobility] New Site -...
What: Washington State EDS Support Group Meeting When: Saturday, May 1, 2-4 pm (THIS WEEKEND) Where: DAHRT Office 616 SW 152nd St Burien, WA 98166 RSVP:...
Ehlers-Danlos National Foundation, Virginia Local Group Greetings to our EDS Friends! My name is Margaret Foote, Vice President and Administrative Secretary...
My youngest son was diagnossed with EDS last year. We are dealing with it. We also found out that my oldest son probably has it too. My Doc never did any tests...
Hello All, My name is Brenda. I live in the Saginaw area of Michigan. My two sons, sister,neice, brother, father and Great Grandmother, as well as Uncle and...
EHLERS-DANLOS NATIONAL FOUNDATION - BALTIMORE GROUP You are cordially invited to attend the next quarterly meeting in Virginia Towers, 500 Virginia Avenue,...
Jim, I'm not in the military either, but wanted to pass along some other places for you to ask for personal experiences and help. http://www.ednf.org -...
Hi Everyone, We are already working on the Fall-Winter 2004 issue of EDS Today. The featured topic in the fall will be Driving and EDS. We are seeking articles...
I have found out that I am going to need surgery on my back in the near future. I am nervous about it. My Dad didn't survive his surgery 20+ years ago. I'm new...
Hi Grace I had back surgery 2 years ago to correct my scoliosis. I had 2, 17 inch rods put in my spine. I have an unknown type of EDS I have had many Dr's...
Thank you so much for the info. I'm not sure what type of EDS my two sons and I have. My youngest was tested because of his enlarged aorta. The tests they did...
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