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ehlersdanlossupportclub · Ehlers Danlos Support Club - A place to talk about Ehlers Danlos Syndrome
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Im really kinda lost!   Message List  
Reply | Forward Message #607 of 642 |
Ok i have never met anyone with ehlersdanlos and i have had this for
25 years! I'm not sure if ehlersdanlos suffers have the same problems
I have. I was told in my earlier years that i have 2 syndromes in 1
have no clue to this day if its true! I have ED type 7a and my bones
brake really easy... does anyone other than me suffer from this? and i
want to have joint surgery on my hands i can hardly use them because
my hands are curling up on me and my feet are doing the same and i
cant stand strait with out pain or feeling like my tindents are going
to snap on me.... I'm not in that much pain but i feel really stiff
and I'm becoming more annoyed as the years go by. does anyone know of
any relief? I have a 2 and 3 year old and i have noticed since i have
had them I'm slowly declining in psychical health again is this
normal? I have talked to dr's and the give me little help! ugh... can
someone help me at all????




Sun Aug 24, 2008 6:56 am

murmaidbaby
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Message #607 of 642 |
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Ok i have never met anyone with ehlersdanlos and i have had this for 25 years! I'm not sure if ehlersdanlos suffers have the same problems I have. I was told...
Nat
murmaidbaby
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Aug 24, 2008
6:56 am
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