I just had hernia surgery on my l4-l5 and they couldnt take it out and this was
4 months ago and i still cant move and work as well as i used to. i dont think
theres anything that can be done, technically eds patients arent supposed to go
under too many complications and non healing occurs. wish i knew that before,
now snow is here and i cant move


----- Original Message ----
From: MIKE DEAN <mike.dean@...>
To: ehlersdanlossupportclub@yahoogroups.com
Sent: Thursday, December 6, 2007 11:40:31 AM
Subject: Re: [Ehlers Danlos Support Club] HELP!!!! lol

Does anyone have any information on successful hernia surgery on a person with
Ehlers Danlos. I had a ventral hernia repaired twice without success and now
have a hernia on the diaphram and the local surgeons say that it is too prone to
failure for them to try to operate. But I am unable to do much physical work,
even a slow walk is too much leaving me short of breath. Any information or
doctor's information would be appreciated. Thank you, mike.dean @sbcglobal.net

Grace <beers6pack@verizon. net> wrote: I was wondering where I can get some CD's
on EDS and as much
information as I can on it. I have several Doctors that are working
with Micah and myself now and they want more information. I need at
least some of it by Thursday. I know that's short notice. Also, I
don't have internet anymore so I am using our neighbors computer. I
know they will let me print things off but if someone can mail me some
info, that would be WONDERFUL.

On a side note, how is everyone doing? I miss being on here. But with
bills backed up from my DH not having a job the internet is one of the
first things to go. But the good news is, he has a job now and starts
Monday....YIPPY! !!

HUGGLES ALL,
Grace

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