Hi DiAnna! I feel your pain. I was first diagnosed with Fibromyalgia
when I was 23, I am now almost 30. I was dignosed with EDS earlier
this year, but have been having problems with my joints since I was
born. I had a dislocated hip when I was born. It progressed from
there. I recently just had shoulder surgery where I had two anchors
put in to help tighten the tendons, has the internal capusle fix and
had part of my collar bone taking out to prevent further
osteoarthritis. I am so glad that you have found a group here with us
that can literally feel your pain. Write anytime.
Megin

--- In ehlersdanlossupportclub@yahoogroups.com, "DiAnna"
<misshappydo@...> wrote:
>
> My name is DiAnna and I am 27. I've been through countless doctors
and
> had my first back sugery at age 23 after countless orthopedics sent
me
> home labeled as a drug seeker. When the MRI was finally ordered, I
had
> two ruptured disks and one herniated. Now, I have 2 reherniations,
> chronic pain, constant depression, and a doctor that is more
concerned
> about "fixing" me and won't even listen to me. My mother was
diagnosed
> with Ehler Danlos after dozens of doctors and 10 (yes, 10) back
> surgeries. My two sisters also have back pain. Somehow she managed
to
> keep going and raise 6 kids and manage a full time job as an RN. I
> can't figure out how she did it! Finding some people that could
> actually understand the suck level of this syndrome would be
> great...sometimes a little validation goes a long way!?
>