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ehlersdanlossupportclub · Ehlers Danlos Support Club - A place to talk about Ehlers Danlos Syndrome
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Reply | Forward Message #549 of 643 |
My name is DiAnna and I am 27. I've been through countless doctors and
had my first back sugery at age 23 after countless orthopedics sent me
home labeled as a drug seeker. When the MRI was finally ordered, I had
two ruptured disks and one herniated. Now, I have 2 reherniations,
chronic pain, constant depression, and a doctor that is more concerned
about "fixing" me and won't even listen to me. My mother was diagnosed
with Ehler Danlos after dozens of doctors and 10 (yes, 10) back
surgeries. My two sisters also have back pain. Somehow she managed to
keep going and raise 6 kids and manage a full time job as an RN. I
can't figure out how she did it! Finding some people that could
actually understand the suck level of this syndrome would be
great...sometimes a little validation goes a long way!?




Thu Aug 30, 2007 4:46 pm

misshappydo
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Message #549 of 643 |
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My name is DiAnna and I am 27. I've been through countless doctors and had my first back sugery at age 23 after countless orthopedics sent me home labeled as a...
DiAnna
misshappydo
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Aug 30, 2007
4:47 pm

Hi DiAnna, I have 3 kids and only one of them has back problems she has scoliosis and she is only 6, but my kids live in pain all the time and it is hard with...
angela salisbury
angelasalisbury@...
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Aug 30, 2007
6:37 pm

Hi DiAnna! I feel your pain. I was first diagnosed with Fibromyalgia when I was 23, I am now almost 30. I was dignosed with EDS earlier this year, but have...
scout2811
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Aug 31, 2007
3:21 am
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