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ehlersdanlossupportclub · Ehlers Danlos Support Club - A place to talk about Ehlers Danlos Syndrome
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Reply | Forward Message #520 of 643 |
Re: [Ehlers Danlos Support Club] New to this....

Andy,
I have Mitral Valve prolapse and I get palpations I was told to cut down on my
caffiene to see if that helps and it has. Hope this helps, hang in there.

Andy Cleveland <kaylinithlee@...> wrote:
my doctor told me the spasm i have are my body being in shock and
wanting to shut down on me he says the only thing i can do about it is sleep but
that doesnt seem to be doing anything now they think i have something along with
eds in me and now i found i have palatiations anyone else have that?

andy

----- Original Message ----
From: "Sue3307@..." <Sue3307@...>
To: ehlersdanlossupportclub@yahoogroups.com
Sent: Wednesday, February 28, 2007 7:02:08 AM
Subject: Re: [Ehlers Danlos Support Club] New to this....

A lot of my pain come from spasms, not like cramps but more like irratable
muscles. Once you gets things back together I am sore but the miserable pain
is gone. I can handle sore.
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Thu Mar 15, 2007 11:28 am

lostintheclo...
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Message #520 of 643 |
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Hello everyone. I just wanted to introduce myself and say hello. I was recently diagnosed with EDS and with Fibromyalgia. Those seem to be just two of my...
catina_frantz
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Feb 13, 2007
6:47 am

Hello - My name is Linda and I too have Ehlers-Danlos and was just recently diagnosed with Fibromyalgia in August. My biggest problem is the constant pain - I...
Linda Hegarty
linlouheg
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Feb 13, 2007
4:13 pm

I was just recently diagnosed with EDS.. and am still trying to find good care for myself.. so I have not even begun to test my 9 year old yet. I am praying...
CaTina
cat_with_chr...
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Feb 15, 2007
4:44 am

There is really no treatment. Rest, splinting and pain management. You can try Iowa City. [Non-text portions of this message have been removed]...
Sue3307@...
sue3307
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Feb 16, 2007
12:44 am

... Hello I am new here and I have fibro and ehlers too. My kids have yet to be tested. I am just relieved to have an answer to my dibilitating pain!! All the...
lostintheclouds2006
lostintheclo...
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Feb 27, 2007
9:58 pm

Hi As with any other Doctor, therapist, etc., it's advisble to check around a lot & do some "surfing". I think it's fairly common knowledge that the all time...
foundit1999
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Feb 28, 2007
11:50 pm

Hi As with any other Doctor, therapist, etc., it's advisble to check around a lot & do some "surfing". I think it's fairly common knowledge that the all time...
foundit1999
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Feb 28, 2007
11:50 pm

Gratfully my chiropractor new of the diagnosis before my docs and he knows how to treat it and it not afraid too. foundit1999 <lisa.cherry2sky@...>...
Shelley Sikorski
lostintheclo...
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Mar 6, 2007
3:01 am

dont see a chiropractor they increase the flexibility and therefore increase the pain i have been through alot of things and i can tell you through experience...
Andy Cleveland
kaylinithlee
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Feb 28, 2007
4:31 am

... thank you. I did stop seeing him and I was in sooooo much pain yesterday I just wanted to die. But thank you sweetie i did not know that it would make it...
lostintheclouds2006
lostintheclo...
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Feb 28, 2007
1:14 pm

I have had great experience with Chiropractors. He has great when something comes undone he helps me get them back in place. If my knee, wrist or back ...
Sue3307@...
sue3307
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Feb 28, 2007
12:45 pm

... Maybe that is why i am in so much pain because i have not been to him lately. ... something ... or back ... greatly ... out the ... You are real ... ...
lostintheclouds2006
lostintheclo...
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Feb 28, 2007
1:18 pm

A lot of my pain come from spasms, not like cramps but more like irratable muscles. Once you gets things back together I am sore but the miserable pain is...
Sue3307@...
sue3307
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Feb 28, 2007
2:16 pm

Now my son is in so much pain today he could not go to school. I have yet to see if he has it but my guess is yes. His spine is able to move all around he even...
Shelley Sikorski
lostintheclo...
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Feb 28, 2007
2:28 pm

my doctor told me the spasm i have are my body being in shock and wanting to shut down on me he says the only thing i can do about it is sleep but that doesnt...
Andy Cleveland
kaylinithlee
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Mar 13, 2007
10:28 pm

Andy, I have Mitral Valve prolapse and I get palpations I was told to cut down on my caffiene to see if that helps and it has. Hope this helps, hang in there. ...
Shelley Sikorski
lostintheclo...
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Mar 15, 2007
11:28 am

-Hi, my name is Megin and I also have Fibromyalgia and was just recently dx with EDS-Hypermobility. I know how frustrating it is to get dx'd with anything such...
scout2811
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Mar 15, 2007
4:45 am

Thanks Megin I will check that out. It might be beneficial to me since I have no co-insurance and the bills are just stacking up on us. lost scout2811...
Shelley Sikorski
lostintheclo...
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Mar 15, 2007
11:30 am
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