Gratfully my chiropractor new of the diagnosis before my docs and he knows how
to treat it and it not afraid too.

foundit1999 <lisa.cherry2sky@...> wrote: Hi

As with any other Doctor, therapist, etc., it's advisble to check
around a lot & do some "surfing". I think it's fairly common
knowledge that the all time best & safest way to keep your muscles
strong, which will in essence streghten your joints, is in warm water
deep water.

Also, I & many other people that I know with EDS have done very well
with chiropractors. The major thing is that you need to make sure
that they are well versed & educated on how to use an "activator".
It's a small silver tool, that they use to "gently nudge" the are out
of alignment, back in.

Will you need ongoing treatment? Depends on your situation. But
they have all kinds of non invasive, non-thrusting ways of indentying
& alleviating problems these days. Just as in most sciences, they
are always looking for ways to increase their ability to diagnose &
treat, without harm. But you have to be super careful, as in any
therapy, to make sure that they well understand EDS (and likely it
will be you that will be teaching them) and that they understand the
ramifications of doing things incorrectly.

I would be rather unsettled if anyone wanted to do any kind of manual
manipulation. My own brother & sister in law are both chiros & they
won't let their hands come within 10 feet of me. It's activator &
their new equipment or nothing. Unfortunately, we live @ 6 hours
away from each other, so it doesn't really help me. But I'd be happy
to find out if there's anyone that they know of wherever you are,
that you might at least want to have a consult. My brother is super
protective & would also want to be sure that anyone with EDS be
properly educated, along with the Doctor.

Or, you could always contact your local Chiro Board & find out about
Chiros certified to use an activator.

Hope this helps. Lisa

--- In ehlersdanlossupportclub@yahoogroups.com, "lostintheclouds2006"
<shelley.jonsikorski@...> wrote:
>
> --- In ehlersdanlossupportclub@yahoogroups.com, Linda Hegarty
> Hello I am new here and I have fibro and ehlers too. My kids have
yet
> to be tested. I am just relieved to have an answer to my
dibilitating
> pain!! All the time they made me think it was in my head, hehe Well
> it is not!! my biggest problem is my pain it is now left me
disabled.
> I would love to work but cant. My kids think it is cool that i can
> pull my skin away from my body, but they are just too young to
> understand that i may have passed it onto them. My mother had it
they
> tell me she had it with lupus, and fibro. This is just so confusing
> for me. I heard physical therapy can help, chiropractor to keep
> joints in place. what do you think?
>
>
>
>
> <linlouheg@> wrote:
> >
> > Hello -
> >
> > My name is Linda and I too have Ehlers-Danlos and was just
> recently diagnosed with Fibromyalgia in August. My biggest problem
> is the constant pain - I have never had any surgery due to joints,
> bone or muscles, etc.. I am 44 yo and the mother of 6 children.
> The oldest 5 have been diagnosed with EDS. My youngest, who is 2,
I
> am sure also has EDS as she is such a little pretzel already:)
> >
> > Our oldest daughter had severe scoliosis and had major surgery
> when she was 14. She is now 20 and everything is still much better
> for her now. I have a 12 year old daughter recently diagnosed with
> Mitral Valve prolapse, which we are keeping an eye on. My oldest
son
> who is now 17 was inthe ER constantly as a baby, because he kept
> popping out his shoulders, elbows, and knees. At that time I
cannot
> begin to tell you haw many Drs. questioned us about how did
> this "really" happen?? We had no idea at that time what the
problem
> was. We had never heard of EDS until a few years ago.
> >
> > I still work full-time and go non-stop. I believe that if I go
> doen the path of letting the pain take me over then I will never be
> able to "bounce back" Don't get me wrong, I know first hand that
the
> pain can be so bad for so many that there is no other choice, but
for
> now i keep going one day at a time. My upper back and legs seem to
> be the worse, and sometimes I just don't know if it is Fibro pain
or
> EDS pain, but I guess it doesn't really matter. I am on medication
> for the painand also a muscle relaxant to sleep at night, but I can
> never find the 8 hours a night to devote to the sleeping pill, so i
> rarely take it, which is not good, because then I have a restless
> nights sleep and the cycle keeps going round and round.
> >
> > Another of my biggest problems right now is FibroFog - I find
it
> very scary and it is getting worse. I will often find myself in
the
> middle of a sentence not having a clue about the word I was just
> going to say next. i laugh it off most of the time, but it can be
> extremely frustrating.
> >
> > The best news I have is that I have a Dr. who is extremely
> understanding and knowledgeable with Fibro, the EDS is a different
> story though - there are not many doctors that I have come across
> that even know what I am talking about. So I too do a lot of
> research and bring it to them.
> >
> > How are your children - do they have any signs or symptoms?
All
> of my kids complain of the chronic leg pains - My 10 year old son
> complains almost nightly and I remember both of his older sisters
> doing the same thing. At that time though, the Dr's told us it was
> just growing pains.
> >
> > It was nice "meeting" you. Hope to chat again soon.
> > linda
> >
> >
> >
> >
> >
> >
> > catina_frantz <catina_frantz@> wrote:
> > Hello everyone. I just wanted to introduce myself and
say
> hello. I
> > was recently diagnosed with EDS and with Fibromyalgia. Those seem
> to
> > be just two of my many diagnosis... but now I am wondering how
much
> > of my other problems all run back to those two conditions. I was
> > very happt to see that there was a group of other EDS people to
> talk
> > to... I am just starting to do research on these diagnosis and
> would
> > love any input you could give me.
> >
> > My main problem right now is pain... it seems like I have been in
> > pain forever and finally feel like I am not some hypocondriac..
or
> > some pain pill junkie.. or some liar.. or some mental patient...
> just
> > a few of the things I have been told in the past!! Finallly I
have
> a
> > NAME to put on it!!
> >
> > I am not sure how you fake dislocating joints.. but I have seen
> > doctors that seem to think it can be done... and jeez... who
would
> > WANT to??? It isnt exactly a FUN experience... not to mention the
> 18
> > knee surgeries I have had because of it... yep.. those were a
> barrel
> > of laughs too!! It is so strange to me to think that I have seen
so
> > many ortho docs... and had so many surgeries and NOT ONE of them
> came
> > up with this diagnosis... I had to do it myself...
> >
> > I am not sure what everyone thought of the show that was on
> > recently... but by the time it was over I was on the computer
> > researching.. and crying... so many things fell into place.. and
I
> > found myself going.. HEY.. cant everyone bend their fingers like
> > that?? I never knew I shouldnt be able to do THAT.... WOW.. I am
> NOT
> > CRAZY!!
> >
> > Anyways.. I didnt mean to write a book!! I hope to talk to all of
> > you lots. OH.. I am 33 and have a 9 yr old son.. and a 7 week old
> > son.. I am married and live in Kansas!
> >
> >
> >
> >
> >
> >
> > ---------------------------------
> > 8:00? 8:25? 8:40? Find a flick in no time
> > with theYahoo! Search movie showtime shortcut.
> >
> > [Non-text portions of this message have been removed]
> >
>






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