I was just recently diagnosed with EDS.. and am still trying to find good care
for myself.. so I have not even begun to test my 9 year old yet. I am praying
he doesnt have it.. he takes after his father so much in build and everything
else that I am hoping he didnt get EDS from me!! It is strange... we just had a
baby.. and we want another one.. but finding out I have this disorder.. makes me
wonder if it is fair to have more children and risk them having it... has anyone
else struggled with this?? I am still doing research and trying to figure out
what the odds are ect.. but there doesnt seem to be much information out there
to look at. What I find seems to either contridict each other.. or simply say
the same thing over and over.
Right now my main goal is to find a doctor in the Kansas City area that is
familiar with EDS and can help treat it. If anyone knows of any please let me
know!!
Blessings,
CaTina
---------------------------------
Any questions? Get answers on any topic at Yahoo! Answers. Try it now.
[Non-text portions of this message have been removed]
Hello everyone. I just wanted to introduce myself and say hello. I was recently diagnosed with EDS and with Fibromyalgia. Those seem to be just two of my...
Hello - My name is Linda and I too have Ehlers-Danlos and was just recently diagnosed with Fibromyalgia in August. My biggest problem is the constant pain - I...
I was just recently diagnosed with EDS.. and am still trying to find good care for myself.. so I have not even begun to test my 9 year old yet. I am praying...
... Hello I am new here and I have fibro and ehlers too. My kids have yet to be tested. I am just relieved to have an answer to my dibilitating pain!! All the...
Hi As with any other Doctor, therapist, etc., it's advisble to check around a lot & do some "surfing". I think it's fairly common knowledge that the all time...
Hi As with any other Doctor, therapist, etc., it's advisble to check around a lot & do some "surfing". I think it's fairly common knowledge that the all time...
dont see a chiropractor they increase the flexibility and therefore increase the pain i have been through alot of things and i can tell you through experience...
... thank you. I did stop seeing him and I was in sooooo much pain yesterday I just wanted to die. But thank you sweetie i did not know that it would make it...
I have had great experience with Chiropractors. He has great when something comes undone he helps me get them back in place. If my knee, wrist or back ...
... Maybe that is why i am in so much pain because i have not been to him lately. ... something ... or back ... greatly ... out the ... You are real ... ...
A lot of my pain come from spasms, not like cramps but more like irratable muscles. Once you gets things back together I am sore but the miserable pain is...
Now my son is in so much pain today he could not go to school. I have yet to see if he has it but my guess is yes. His spine is able to move all around he even...
my doctor told me the spasm i have are my body being in shock and wanting to shut down on me he says the only thing i can do about it is sleep but that doesnt...
Andy, I have Mitral Valve prolapse and I get palpations I was told to cut down on my caffiene to see if that helps and it has. Hope this helps, hang in there. ...
-Hi, my name is Megin and I also have Fibromyalgia and was just recently dx with EDS-Hypermobility. I know how frustrating it is to get dx'd with anything such...
Thanks Megin I will check that out. It might be beneficial to me since I have no co-insurance and the bills are just stacking up on us. lost scout2811...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
Offline 
Send Email
