Hello everyone. I just wanted to introduce myself and say hello. I
was recently diagnosed with EDS and with Fibromyalgia. Those seem to
be just two of my many diagnosis... but now I am wondering how much
of my other problems all run back to those two conditions. I was
very happt to see that there was a group of other EDS people to talk
to... I am just starting to do research on these diagnosis and would
love any input you could give me.
My main problem right now is pain... it seems like I have been in
pain forever and finally feel like I am not some hypocondriac.. or
some pain pill junkie.. or some liar.. or some mental patient... just
a few of the things I have been told in the past!! Finallly I have a
NAME to put on it!!
I am not sure how you fake dislocating joints.. but I have seen
doctors that seem to think it can be done... and jeez... who would
WANT to??? It isnt exactly a FUN experience... not to mention the 18
knee surgeries I have had because of it... yep.. those were a barrel
of laughs too!! It is so strange to me to think that I have seen so
many ortho docs... and had so many surgeries and NOT ONE of them came
up with this diagnosis... I had to do it myself...
I am not sure what everyone thought of the show that was on
recently... but by the time it was over I was on the computer
researching.. and crying... so many things fell into place.. and I
found myself going.. HEY.. cant everyone bend their fingers like
that?? I never knew I shouldnt be able to do THAT.... WOW.. I am NOT
CRAZY!!
Anyways.. I didnt mean to write a book!! I hope to talk to all of
you lots. OH.. I am 33 and have a 9 yr old son.. and a 7 week old
son.. I am married and live in Kansas!