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ehlersdanlossupportclub · Ehlers Danlos Support Club - A place to talk about Ehlers Danlos Syndrome
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ABC Something good came out it all.   Message List  
Reply | Forward Message #495 of 643 |
The good that came of all this? Do you know what it is?
All groups came together for the first time that I know of.
We all came together as the whole EDS community! That is a WONDERFUL THING!
Now we need to work together and go as high up the chain as we can. Lets find
the best possible people to write and stick to them. I know allot of names,
emails and phone numbers have been thrown around, Lets concentrate our efforts
where it's going to really count. Several people right now are looking at
everything that has been put out there and looking into the most appropriate use
of our efforts. Wait a few days and I think we'll have the answer to complain
to. I'd rather see us bombard the right few people than to randomly send letters
around.
Thank you all for coming together as the family we are suppose to be.
Cindy Clark

Please forward the VEDS board.


[Non-text portions of this message have been removed]




Sun Jan 28, 2007 7:23 pm

manyhats42
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Message #495 of 643 |
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The good that came of all this? Do you know what it is? All groups came together for the first time that I know of. We all came together as the whole EDS...
cindy clark
manyhats42
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Jan 28, 2007
7:54 pm

i'm with you 100%...
hobbleon4ever
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Jan 28, 2007
10:24 pm
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