Hi Dawn:

See what a great group this is? There isn't anything that you can't
ask. We are all in this together.

For a lot more info, you can go to www.ednf.org & if you really want a
ton of information, I would really suggest that you join the
organization. There are even payment plans & you can join for s little
as $15 per year, but you don't get a bunch of the freebies & when you
want to read our monthly newsletter "Loose Connection", you have to
read it online. But if you join for $25 a year, you can pay just $4.20
a month until it's paid off.

You will be so much more educated, you simply won't believe it. Just
go to the website & click on "Join".

I would also suggest that you look on the website, no matter what &
find out where the most local support group is to you. It makes a HUGE
difference. Having started one of the first groups, since we we
instituted them, nearly 10 years ago & having been the president of it
since them, I can't tell you just how much conversation goes on,
exchange of info, questions asked & answered & more. And there's
nalways some goodies around as well, I believe in every group.

If I can help with anything, please email at Lisa.cherry2sky@...

Hang in there, together we can beat this thing & have some awesome
Doctors that work with us! And, if at all possible, now every 2 years
wewe have an International speakers, vendors, etc. that would blow your
mind.

I've often made this offer to people.... If you go & your sorry you
did, I'll find a way to pay to pay for your registration fee. Believe
me, not a single person has ever taken me up on it!

Hope to hear soon.

Stay happy, Lisa





Lisa C. Schoenberg, RN
lisa.cherry2sky@...
Lifetime Achievement Award to the EDS Community
EDNF Shining Stars Award
President/Founder North Central NJ EDNF Support Group
International Projects Coordinator EDNF
www.ednf.org

--- In ehlersdanlossupportclub@yahoogroups.com, "wolf_lover999"
<wolf_lover999@...> wrote:
>
> My name is Dawn...I'm 19 years old...I was diagnosed with
> Ehlers-Danlos Syndrome a little while ago...however shortly after I
> was diagnosed...I lost my medical...and I can't afford to see any of
> the doctors that I went to. I'm here to learn as much as I
> can...seeing that I really don't know that much about it.
> Dawn
>