Angie,

Thanks so much for replying. I am in the healthcare field here in New
Jersey I work with many neurologists and I am an MRI tech so if there is
anything
I can do to help with your search regarding your children let me know.

Re: my diagnosis. I started with chest pain and then it became shoulders
and wrists. My neck and lower back have always bothered me but it seemed to
get worse. Because my pain is on both sides and upper and lower quads I
thought Fibromyalgia too. I even said that to the Dr. who diagnosed me with
EDS.
He asked about my pain then asked about my skin whether I bruise easily(yes)
and if I could touch my nose with my tongue(yes)and if I was
doublejointed(yes). he hands me a piece of paper that said EDS classical and
told me to
come back in 6 weeks. I immediately started the research. My maternal
grandmother had skin fragility and early onset of arthritic pain in her hands
and
wrists. Her mother too. My mother was diagnosed with RA(rheumatoid) in 1997.
She also bruised easily.

I have had an uterine rupture with my second pregnancy after trying to go
vaginal birth after c-section. I have asthma since having half my left lung
removed from infected blebs that turned in to a cavetatum pneumonia. I am
nearsighted and have worn glassed since 5 years old. I used to be more
flexible
but now have too much pain. I do have a problem wth the bones in my wrist
separating or disassociating as they call it. Lately I crack my neck
constantly like people crack knuckles and this is causing me headaches and neck
pain.

Thank you so much for answering my letter it feels so good to have someone
"listen".

Sandi


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