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My Diagnosis One Year Later   Message List  
Reply | Forward Message #455 of 643 |
Hi I originally posted last July after being diagnosed by a
Rheumatologist. I have seen an expert on EDS from Philadelphia who
says I don't have EDS because I do not have the flexibility or the look
and have never had a dislocation. According to him my uterine rupture
was a coincidence and my lung blebs too. I just need to lose weight
and all my pains will go away. Sensitive huh and he is considered to
be one of the leading experts in this.

So I was wondering if anyone could possibly recommend a doctor in the
central NJ area. My pain is getting worse and I have so many seemingly
unrelated symptoms. I am of course still worried about my son and his
issues. He can now pop his shoulders out at will. Even though I tell
him not to.

As always I sincerely appreciate any info anyone can give me. Thanks
so much





Fri Nov 10, 2006 4:56 am

mlslng99
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Message #455 of 643 |
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Hi I originally posted last July after being diagnosed by a Rheumatologist. I have seen an expert on EDS from Philadelphia who says I don't have EDS because I...
Sandi
mlslng99
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Nov 10, 2006
5:03 am

Hi Sandi, do you get things like head ache's constant body pain or neck problems??? I do a ton of searching constantly and I have a few ideas but I need more...
angela salisbury
momofthreeha...
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Nov 10, 2006
3:26 pm

Angie, Thanks so much for replying. I am in the healthcare field here in New Jersey I work with many neurologists and I am an MRI tech so if there is...
MLSLNG99@...
mlslng99
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Nov 13, 2006
3:46 am

Hi, all, especially Sandi, Your case pretty much mirrors mine. They diagnosed me in pretty much the same way. To rule out heart anurisms they did a scan of...
Ann McCullough
annsanity2go
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Nov 13, 2006
2:22 pm

Hi Sandi, Very interesting! I have had a horrible day sorry. You know it is one of those days when you need a friend and nobody is home. Well we got kind...
angela salisbury
momofthreeha...
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Nov 14, 2006
1:36 am

Hi Sandi and Angie, I have been following your e-mails back and forth and just want to jump in and say hello and how sorry I am for the news you have just ...
linlouheg
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Nov 15, 2006
4:34 pm

Hi Linda thank you! Yes most certianly I will take a look at any info! I am sorry to hear about your friends newborn. I was diagnoised with diabetes at age...
angela salisbury
momofthreeha...
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Nov 16, 2006
2:00 am

Angie, My heart goes out to you and your children. I am so sorry that when you finally got the answers to your questions that it is something so serious....
MLSLNG99@...
mlslng99
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Nov 15, 2006
7:01 am

Hi Sandi, Thank you. But we see only the best of the best neurolgist here at Detroit. We actually see a genetic neurologist. Yeah there is such a thing....
angela salisbury
momofthreeha...
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Nov 16, 2006
1:37 am

Hi Linda, Hi and thank you. How did u get your diagnosis? I didn't realize that u can have both Fibro and EDS. Can u make any suggestions regarding...
MLSLNG99@...
mlslng99
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Nov 16, 2006
4:08 am

... Sandi, Fibro and EDS are often seen together. In fact, there are even online groups and websites specifically devoted to people who have both. ...
Barbara Davis
uggen_davis
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Nov 16, 2006
5:30 pm

Hi Angie. I am so glad that you found a Dr. that you are comfortable with. I think that is half the battle. I am not familiar with mitochondrial dx is that...
MLSLNG99@...
mlslng99
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Nov 16, 2006
4:21 am

Hi Sandi, Not to my knowledge. It is a cell abnomality. Sometimes these peopl that have this have red straking fibors in thier muscles so they are doing a...
angela salisbury
momofthreeha...
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Nov 16, 2006
11:01 pm

Thanks so much Barb. Sandi [Non-text portions of this message have been removed]...
MLSLNG99@...
mlslng99
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Nov 16, 2006
6:35 pm
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