they never said, my daughter just said she would betanding talking to
friends and then she would fall and 9 times out of ten she would break a
bone. Now she just has real bad headaches


>From: kdavis@...
>Reply-To: ehlersdanlossupportclub@yahoogroups.com
>To: ehlersdanlossupportclub@yahoogroups.com
>Subject: RE: [Ehlers Danlos Support Club] Fw: EDS Today Call for Articles
> Fall 2006
>Date: Thu, 24 Aug 2006 20:38:00 -0700 (PDT)
>
>Were they seizures or blackouts?
>
>I had a lot of blackouts/dizzy spells. 20 years later, it was dx'd as
>Chiari 0 or tonsillar ectopia.
>
>-Barb
>
> > My daughter was having sever headaches and they thought she was having
> > seizures.. they never really told me.. what the final out come was.. I
> > dont
> > think they really knew.. they thought maybe that was why she was falling
> > all
> > the time.. but I think in the end it turned out to be the EDS
> >
>