My daughter was having sever headaches and they thought she was having
seizures.. they never really told me.. what the final out come was.. I dont
think they really knew.. they thought maybe that was why she was falling all
the time.. but I think in the end it turned out to be the EDS

>From: kdavis@...
>Reply-To: ehlersdanlossupportclub@yahoogroups.com
>To: ehlersdanlossupportclub@yahoogroups.com
>Subject: RE: [Ehlers Danlos Support Club] Fw: EDS Today Call for Articles
> Fall 2006
>Date: Thu, 24 Aug 2006 20:25:56 -0700 (PDT)
>
>RE: Paying for college
>
>Try Dept of Vocational Rehab.
>
>Also try www.fastweb.com to look up scholarship options.
>
>RE: Brain issuesd>
> > Have you ever heard of that
> > with EDS???? I know I am changing the subject for what you had asked
>but
> > I have been searching for so long for an answer I have to ask anyone I
> > talk to. I have heard of a Chari one malformation being EDS related.
>But
> > I have yet heard of White Matter abnormalitys being EDS related.
>
>I just was dx'd with Chiari 0 this month. I have been hearing a lot about
>the findings of EDS associated with Chiari. I am unfamiliar with White
>Matter Abnormalities.
>
>-Barb
>