Pain Info/Advocacy and Conference Materials Available
There are a limited number of Conference materials available
For those of you who were unable to attend the conference or who were able to,
but who have asked to receive additional copies of the 200+ page “Pain
Advocacy Toolkit”, please know that there is a limited supply still available.
They are incredibly educative, resourceful, fact filled work & reference books.
In actuality you will be receiving these valuable materials FREE. We want all
of the information available to everyone possible.
We can ship these to you at the nominal cost of only $18 each; need only to
cover the cost of shipping and our cost of receipt. They will only be available
on a “first come, first served basis”.
We also have a larger supply of the accompanying CD of the Tool Kit, which are
available at only $10.00 each. They contain the information in the workbook.
If you would like to purchase the workbook (which does come complete with a CD)
AND an additional CD, the total cost will be $23.
Included in your tax deductible donation, you will receive; not only the tool
kit, but several other items that were distributed to the registered conference
attendees FREE OF CHARGE, in their registration “Goodie Bags”, AS THEY
REMAIN AVAILABLE.
Please contact me at your earliest convenience and I will ship the items
you’ve requested to you as soon as possible.
The Complete Toolkit (work book & CD) = $18
The Complete Toolkit CD (w/o workbook) = $10.00
The Complete Toolkit with extra CD = $23
Please make out all tax deductible checks to:
EDNF - North Central NJ
Please send all checks to:
Lisa C. Schoenberg, RN
EDNF
No. Central NJ - President
1004 Beach Drive
Cliffwood Beach, NJ 07735
Please email me as soon as possible to let me know how many of each item you
need.
Lisa.cherry2sky@...
Thanks, Lisa
A partial listing of the Table of Contents:
PAIN MANAGEMENT ADVOCY TOOLKIT
- Why Get Involved?
- Getting Started Key Messages & Identifying Contacts
- Advocacy Through Professional Organizations
- Advocacy Through Community Organizations
- Advocacy Through Media Relations
- Advocacy Through Legislative Agencies
- Targeting Your Efforts
- Condition Specific
o Amputee/Phanton Limb Pain
o Burn Pain
o Headache Pain
o HIV-Related Pain
o Musculo Skeletal Pain
* Arthritis Pain
* Osteoarhtritis Pain (OA)
* Rheumatoid Arthriitis (RA)
* EHLERS DANLOS SYNDROME
* Low- Back Pain
* Temperomandibular Joint Dysfucntion (TMJ)
o Neuopathic Pain
* Diabetic Neuropathy Pain
* Fibromyalgia Pain
* Multiple Sclerosis Pain
* Reflex Sympathetic Dystrophy Pain (RSDS)/Complex Regional Pain
Syndrome (CRPS)
o Sickle Cell Disease Pain
- Population Specific
o Age Related
o Gender And Pain Management
o Ethnic Minorities
o Underserved Population
o Veteran
o Workplace Injuries
Related Topics
o Caregivers
o Cost of Pain
o Prescription Drug Abuse And Diversion
Lisa C. Schoenberg, RN
lisa.cherry2sky@...
Ehlers Danlos National Foundation
Lifetime Achievement Award to the EDS Community
Shining Stars Award
President/Founder North Central N.J. Chapter
International Projects Coordinator
www.ednf.org
KNOWLEDGE IS POWER!!
Please give generously to the EDNF a 501(c)(3) Non Profit Organization
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