Anne, have they done further tests to help diagnose which type? My doc ran some
on me just to rule out some of the symptoms. Mine is pretty much the
hyperflexibility type. I don't have the really loose skin, but do bruise
easily, heal slowly, etc.
I've found that, unless people have experienced ED they don't really have an
understanding of what it means to those of us who have it. It is the rare hubby
who has that level of empathy. That's why this group is here. Hang in there!
Ann ( annsanity2go@... )
Iowa
Sheena Watlington <butterflyer82@...> wrote:
ann im here if you need anything just email me at butterflyer82@...
On 1/26/06, jettset692003 <jettset692003@...> wrote:
>
> I have been diagnosed with eds but have yet to find out what type. I
> have done alot of research and am pretty scared of what the final out
> come is going to be, based on what i know of my symtoms and what i have
> already been through surgery wise. If anyone is willing to be my
> support partner that would be great - my husband is a lot less than
> supportive about the whole thing ! Thanks anne.
>
>
>
>
> ------------------------------
> YAHOO! GROUPS LINKS
>
>
> - Visit your group
"ehlersdanlossupportclub<http://groups.yahoo.com/group/ehlersdanlossupportclub>"
> on the web.
>
> - To unsubscribe from this group, send an email to:
>
ehlersdanlossupportclub-unsubscribe@yahoogroups.com<ehlersdanlossupportclub-unsu\
bscribe@yahoogroups.com?subject=Unsubscribe>
>
> - Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service <http://docs.yahoo.com/info/terms/>.
>
>
> ------------------------------
>
[Non-text portions of this message have been removed]
SPONSORED LINKS
Ehlers danlos syndrome Genetic disorders List of genetic disorders
Human genetic disorders
---------------------------------
YAHOO! GROUPS LINKS
Visit your group "ehlersdanlossupportclub" on the web.
To unsubscribe from this group, send an email to:
ehlersdanlossupportclub-unsubscribe@yahoogroups.com
Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.
---------------------------------
__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com
[Non-text portions of this message have been removed]