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Re: [Ehlers Danlos Support Club] hi i have eds mutated classic type   Message List  
Reply | Forward Message #391 of 643 |
Re: [Ehlers Danlos Support Club] hi i have eds mutated classic type

Your welcome Sheena. Ask anything, anytime. :~)
Don't worry about the miss spelled words or typing errors, we'll all get
through it. The important thing is that you get the answers you need. What ever
helps you get through this and understand it all, is all that is what's
important. You can pour your heart out on a bad day, Ask anything big or small,
even private. Share excitemnment from something good. Just be yourself. You are
with people that understand.
Cindy


----- Original Message -----
From: Sheena Watlington
To: ehlersdanlossupportclub@yahoogroups.com
Sent: Saturday, January 07, 2006 5:40 PM
Subject: Re: [Ehlers Danlos Support Club] hi i have eds mutated classic type


thanks

On 1/6/06, cindy clark <c-clark05@...> wrote:
>
>
> From: Sheena Watlington
>
>
> like how i am the only one in my family. i am a classic type mutated. i
> have
> signs of the other types of eds. do you know of any one else like that.
> ******************
> Yes. It happens sometimes that a person just shows up with EDS when no
> one else in the family has it. I can't remeber the name for that though. And
> it is very common to have cross overs into other types. Some people can't be
> typed at all and are called an EDS veriant.
> Cindy
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> SPONSORED LINKS
> Ehlers danlos
syndrome<http://groups.yahoo.com/gads?t=ms&k=Ehlers+danlos+syndrome&w1=Ehlers+da\
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>
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> Human
> genetic
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danlos+syndrome&w2=Genetic+disorders&w3=List+of+genetic+disorders&w4=Human+genet\
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Sat Jan 7, 2006 11:33 pm

manyhats42
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Forward
Message #391 of 643 |
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Hi Sheena, I'm Cindy We have either type Classical or 3. The docs don't seem to agree. I don't have much pain, but my 18 year old son is having it really bad...
cindy clark
manyhats42
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Jan 5, 2006
7:01 pm

... I don't have much pain, but my 18 year old son is having it really bad for 4 years now. He is homebound. He hasn't gone to school in almost 4 years due...
smjbr04
Offline Send Email
Jan 5, 2006
8:05 pm

From: smjbr04 To: ehlersdanlossupportclub@yahoogroups.com .... i was told at 12 then i got the difenate from gene tests when i was 20. when i was told that i...
cindy clark
manyhats42
Offline Send Email
Jan 5, 2006
8:49 pm

how many mutates do you know of? ... [Non-text portions of this message have been removed]...
Sheena Watlington
smjbr04
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Jan 6, 2006
2:46 pm

From: Sheena Watlington how many mutates do you know of? **************** I'm sorry, I don't know what your asking. Can you ask it again? Cindy [Non-text...
cindy clark
manyhats42
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Jan 6, 2006
6:47 pm

Hello! I'm new here, my daughter (5) was just diagnosed a couple of days before Christmas with EDS suspected Hypermobility type. She's been having all kinds of...
Amy Fleeman
bugnlogan
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Jan 6, 2006
7:09 pm

amy, it is hard to say what is to high impact. my docters told me i could do things but no sports unless it was swimming and that is the best thing any way. as...
Sheena Watlington
smjbr04
Offline Send Email
Jan 6, 2006
9:36 pm

like how i am the only one in my family. i am a classic type mutated. i have signs of the other types of eds. do you know of any one else like that. ... ...
Sheena Watlington
smjbr04
Offline Send Email
Jan 6, 2006
9:14 pm

From: Sheena Watlington like how i am the only one in my family. i am a classic type mutated. i have signs of the other types of eds. do you know of any one...
cindy clark
manyhats42
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Jan 6, 2006
9:59 pm

thanks ... [Non-text portions of this message have been removed]...
Sheena Watlington
smjbr04
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Jan 7, 2006
10:41 pm

Your welcome Sheena. Ask anything, anytime. :~) Don't worry about the miss spelled words or typing errors, we'll all get through it. The important thing is...
cindy clark
manyhats42
Offline Send Email
Jan 7, 2006
11:42 pm
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