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ehlersdanlossupportclub · Ehlers Danlos Support Club - A place to talk about Ehlers Danlos Syndrome
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Re: [Ehlers Danlos Support Club] hi i have eds mutated classic type   Message List  
Reply | Forward Message #382 of 643 |
Re: [Ehlers Danlos Support Club] hi i have eds mutated classic type


From: smjbr04
To: ehlersdanlossupportclub@yahoogroups.com


.... i was told at 12 then i got the difenate from gene tests when i was 20.
when i was told that i have eds i did research to fine more like me
and it was just now that i am finding people.
******************
Glad you found us. Have any Questions? ask away.
Cindy






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[Non-text portions of this message have been removed]
Thu Jan 5, 2006 8:12 pm

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manyhats42
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Forward 		Message #382 of 643 |
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Hi Sheena, I'm Cindy We have either type Classical or 3. The docs don't seem to agree. I don't have much pain, but my 18 year old son is having it really bad... 		cindy clark
manyhats42
Offline Send Email 		Jan 5, 2006
7:01 pm

... I don't have much pain, but my 18 year old son is having it really bad for 4 years now. He is homebound. He hasn't gone to school in almost 4 years due...
smjbr04
Offline Send Email 		Jan 5, 2006
8:05 pm

From: smjbr04 To: ehlersdanlossupportclub@yahoogroups.com .... i was told at 12 then i got the difenate from gene tests when i was 20. when i was told that i...
cindy clark
manyhats42
Offline Send Email 		Jan 5, 2006
8:49 pm

how many mutates do you know of? ... [Non-text portions of this message have been removed]...
Sheena Watlington
smjbr04
Offline Send Email 		Jan 6, 2006
2:46 pm

From: Sheena Watlington how many mutates do you know of? **************** I'm sorry, I don't know what your asking. Can you ask it again? Cindy [Non-text...
cindy clark
manyhats42
Offline Send Email 		Jan 6, 2006
6:47 pm

Hello! I'm new here, my daughter (5) was just diagnosed a couple of days before Christmas with EDS suspected Hypermobility type. She's been having all kinds of...
Amy Fleeman
bugnlogan
Offline Send Email 		Jan 6, 2006
7:09 pm

amy, it is hard to say what is to high impact. my docters told me i could do things but no sports unless it was swimming and that is the best thing any way. as...
Sheena Watlington
smjbr04
Offline Send Email 		Jan 6, 2006
9:36 pm

like how i am the only one in my family. i am a classic type mutated. i have signs of the other types of eds. do you know of any one else like that. ... ...
Sheena Watlington
smjbr04
Offline Send Email 		Jan 6, 2006
9:14 pm

From: Sheena Watlington like how i am the only one in my family. i am a classic type mutated. i have signs of the other types of eds. do you know of any one...
cindy clark
manyhats42
Offline Send Email 		Jan 6, 2006
9:59 pm

thanks ... [Non-text portions of this message have been removed]...
Sheena Watlington
smjbr04
Offline Send Email 		Jan 7, 2006
10:41 pm

Your welcome Sheena. Ask anything, anytime. :~) Don't worry about the miss spelled words or typing errors, we'll all get through it. The important thing is...
cindy clark
manyhats42
Offline Send Email 		Jan 7, 2006
11:42 pm
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