Hi Sheena, I'm Cindy
We have either type Classical or 3. The docs don't seem to agree. I don't have
much pain, but my 18 year old son is having it really bad for 4 years now. He
is homebound. He hasn't gone to school in almost 4 years due to pain. This
syndrome can be cruel to some, can't it? It doesn't seem fair. For my boy, his
knees are the worst. But basically every major joint and some small ones are
affected. He has had to take narcotics for a long time now. So how do you try
to help your pain? Bracing? meds? exercise? Nutrition?
Your not alone by any means. From all the EDS boards I'm on, there about 2000
of us. And there other boards I haven't bothered to join. There's always someone
that can relate to what your going through.
Cindy



----- Original Message -----
From: smjbr04
To: ehlersdanlossupportclub@yahoogroups.com
Sent: Thursday, January 05, 2006 12:10 AM
Subject: [Ehlers Danlos Support Club] hi i have eds mutated classic type


frist sorry for the spelling. i am 23 and have a beatiful daughter. she
is not showing any sings of have eds (thank god). it was heard growing
up with no one to relate to. and i thought i was the only one. but it
brings me to tiers to know im not alone. my husband is the must
wonderful man. but i still would like to have some one to talk to that
understands what i feel. and painful it is.
thanks for starting this so so many of us are not alone.

p.s. im sheena





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