> Sorry this letter is so long. I would appreciate if someone can just
> point me in the right direction. Thank you very much and again sorry
> about the wordy letter.
Welcome, Sandi!
No apologies necessary for the length of your post. Here are some resources
on EDS. Hope they help get you started.
EDS Today (USA)
http://www.edstoday.org/
CEDA (Canada)
http://www.ehlersdanlos.ca/
EDS Support Group (UK)
http://www.ehlers-danlos.org/
EDNF (USA)
http://www.ednf.org/
-Barb