Hello Everyone

I recently joined this group and have been mostly lurking. My name
is Sandi. I am a 43 y/o woman who was diagnosed with EDS type I
according to my Rheumatologist. I am double jointed and can touch my
nose with my tongue. I have never had a dislocation as far as I
know. My Grandmother had skin fragility and severe pain starting in
her 30's. I have been having pain everwhere
(hips,knees,wrists,shoulders,back and neck.) Which was what brought
me to the DR.s in the first place. Once I started researching I
realized I have had some VEDS events-uterine rupture andlung blebs.
I know I have read that it is possible to have crossover symptoms but
when I went to a genetisist she didn't think I have type I at all.
I am completely confused now and am concerned for my three children.
My 13 y/o seems to be very flexble and has been complaining alot
about pain in his knees and chest.

Sorry this letter is so long. I would appreciate if someone can just
point me in the right direction. Thank you very much and again sorry
about the wordy letter.

Sandi