> Hello I am new to this group. I have type 3 hyper extensive ehlers
> danlos. I also have chiari malformation. I'm curious if anyone else
> has had this double up and what sort of complications it has caused.

There are people on the CEDA list that have both of these syndromes. I
have heard that they are studying a possible connection. If you would
like, I will check with the folks on CEDA and have them get in touch with
you.

-Barb