ehlersdanlossupportclub : Message: EDS and chiari

ehlersdanlossupportclub · Ehlers Danlos Support Club - A place to talk about Ehlers Danlos Syndrome

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Message #365 of 643 |

Hello I am new to this group. I have type 3 hyper extensive ehlers
danlos. I also have chiari malformation. I'm curious if anyone else
has had this double up and what sort of complications it has caused.

Sat Nov 12, 2005 12:33 pm

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"kirafae1986" <kirafae1986@...>

kirafae1986

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Message #365 of 643 |

Expand Messages	Author	Sort by Date
Hello I am new to this group. I have type 3 hyper extensive ehlers danlos. I also have chiari malformation. I'm curious if anyone else has had this double up...	kirafae1986	Nov 12, 2005 12:33 pm
... There are people on the CEDA list that have both of these syndromes. I have heard that they are studying a possible connection. If you would like, I will...	kdavis@... uggen_davis	Nov 12, 2005 4:54 pm
... else ... caused. ... ******************** Hi, My son has EDS and Chiari. He is 18. The National Institute of Health and The Chiairi Institute in NY are...	cindy manyhats42	Nov 12, 2005 10:53 pm
I have quite a complex case and am curious is I should look into POTS...everntually....I also have syringoymelia form c2-t10 and has now perforated my spinal...	kirafae1986	Nov 13, 2005 7:57 am

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