Hi,
I am trying to find out all the info I can about this syndrome. My
daugther is 9 and was just diagnosed a week ago with EDS
Hypermobility. They feel she got it from me as I show all the signs
but thought I was just getting old and painful. My daughter is having
a tough time getting all these appointments set up and still trying to
start her first few days of 4th grade. Any help out there or words of
encouragement would be appreciated. We are currently being cared for
at Children's in Minneapolis.

Thanks,
Katherine