hi this is shelby the new member to ur group and i just want to let u know
that i am very upset w/ ur support group. i am a teen seeking help advice
anything that i can do for my ehlers disease and u dont even have the decency to
write me back with a hello or any info on ehlers or anything. and for an owner
that is not right and i would know bc my sis owns 2 groups and has her own web
site. i am a teen seeking help 4 a disease that there is little info about and i
was j/w wht info other ppl had that have the same disease and or were close to
the same age as me and this is the only site that i can find and i think it isnt
right that u cant even say hi or share some info w/ me. i hope the best w/ u and
ur groupe but its not gonna go far if u dont even talk to new ppl bc soon thats
all there will be is new ppl and then u wont have anyone in ur group bc u dont
have the decency to even talk to new ppl. i cant believe that ur the only
support groupe 4 this and u dont even give any
support. well thats all i have to say and i just wanted to let u know whts up
bc this is not right and im VERY upset.


shelby






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