How exactly did you get diagnosed? My ortho, at the time, just started wiggling
and poking more and more things and said, sort of off-hand, "Did you know you
have Ehlers-Danlos?". I've never had any more 'official' diagnosis, but from
what I've read, and the problems I'm having, it all makes sense.

Also, now that you've been diagnosed, is there anything different you can do
about the problems, or is treatment still more or less the same?

Thanks for replying,

Terry
----- Original Message -----
From: Sandi Hunter
To: ehlersdanlossupportclub@yahoogroups.com
Sent: Tuesday, October 19, 2004 12:27 PM
Subject: RE: [Ehlers Danlos Support Club] Newbie says hello


Hi Terry,
Sound like my situation. I am 52 in a couple of weeks and I was diagnosed at
50 after 14 different ortho surgeries. I kept telling the Drs that something
had to be wrong with me... I was just too healthy to be having all these things
go wrong with my joints.

I'm out here if you need to chat.
Sandi Hunter
shunter@...


-----Original Message-----
From: Terry [mailto:thackett@...]
Sent: Tuesday, October 19, 2004 11:13 AM
To: ehlersdanlossupportclub@yahoogroups.com
Subject: [Ehlers Danlos Support Club] Newbie says hello



Hi,

I'm a 46-y.o. male, just joined. I was diagnosed with EDS a few
years ago on a visit to an ortho, but never thought much of it. Now
an assortment of joint and soft-tissue injuries and ailments have
mounted up to the point where I have a lot of discomfort and I'm
seeking more info and any treatment options.

I need to catch up on some reading first, it looks like.

Cheers to all,

Terry





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