Thank you so much for the info. I'm not sure what type of EDS my two sons and I
have. My youngest was tested because of his enlarged aorta. The tests they did
came back negative but the genetics is sure he has EDS. My dad and two of his
brothers and his mom all died of ruptured aneurisms between 38 and 42 years of
age. When my dad died the doc. told my mom my dad had eds. All I know is the 3
of us have very loose joints and easily bruised and take a little longer to
heal, plus very flexible. That and the aneurisms. It's a little comforting to
know that eds patients can have surgery. I'm not sure what they will be doing
to me yet. Thanks again for the info!

Grace

----- Original Message -----
From: Barbara Davis
To: EhlersAngel ; ehlersangel2 ; EDS Support Club ; fmshmscfs@yahoogroups.com
; EDS-FMS
Sent: Thursday, July 01, 2004 3:23 PM
Subject: [Ehlers Danlos Support Club] EDS Today Call for Articles


Hi Everyone,

We are already working on the Fall-Winter 2004 issue of EDS Today. The
featured topic in the fall will be Driving and EDS. We are seeking articles
related to driving such as any of the following:

* Vehicle Modifications such has hand controls, wheelchair ramps, wheelchair
lifts, etc as well as financial assistance programs for vehicle
modifications.

* Adaptive equipment to make driving comfortable for people with EDS, such
as steering wheel covers, lumbar pillows, etc.

* Tips and tricks for avoiding pain on long road trips.



* Driving with braces, any special considerations for people who wear
braces that might interfere with driving.

Your personal stories and experiences are welcome and encouraged. EDS Today
is the newsletter FOR, BY, and ABOUT people with EDS, which means that it is
YOUR newsletter.

EDS Today is a 501(c)3 non-profit organization. Authors are not compensated
financially for articles, but they do receive a free copy of the issue in
which their article appears.

To submit an article, email it to info@....

Barbara Uggen-Davis
Editor, EDS Today
http://www.edstoday.org/


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