Hello All, My name is Brenda. I live in the Saginaw area of Michigan.
My two sons, sister,neice, brother, father and Great Grandmother, as
well as Uncle and cousins seem to have the same condition. I don't
know what form of Ehlers-Danlos we have , but my Dermotologist wants
other family members and me to go to Henry Ford Hospital in Detroit
to be tested. My oldest son, now 21 was diagnosed there when he was 3
years old , with Epidermis Balosa Simplex. This is the thin skin we
all seem to have. I have had many joint problems and have
osteoarthritis as well as Fibromyalgia. I wear a knee brace which I
have had since a 1996 kneecap removal. I'd like to hear other peoples
personal stories of what they have been through. I can't write all
the things I've experienced here, It would be a short novel. I will
be 46 this May and have a lifetime of things that make more sense
now. My oldest son wants to know more too.Anyone with information
can send me an e-mail, or several if you want. All my life I have
felt so alone in this. My Mother called it "thin skin" and my Dad was
discharged from the military twice on medical terms because of the
blisters he got during boot camp during WWII. Someone.....talk to me,
please.

Thankyou Sincerely
Brenda