My youngest son was diagnossed with EDS last year. We are dealing
with it. We also found out that my oldest son probably has it too.
My Doc never did any tests on me because so far I have no heart
problems. I am seeing a new Doc, but she wants me to find out where
I would go to be tested and what tests need to be done. My dad had 3
anurisms in his head that was repaired then a year later one
ruptured in his lower back and killed him. My youngest has an
enlarged aorta just above his heart. Does anyone know what tests I
need to take????? I finaly have a Doc that is concerned and willing
to do this. I just need to know what tests. She is also looking them
up. Thanks for any help.

HUGGS