> In 2002 members of the EDS community adopted February as EDS Awareness
> Month. During the first-ever EDS Awareness month, several EDS
organizations
> and individual volunteers worked together to promote awareness and media
> exposure. Information kits were distributed to physicians and several
news
> articles were done about people with EDS.
>
> The 2004 EDS Awareness Month is just around the corner. It's time again
to
> work together to promote awareness of EDS within your community. Here's
> what you can do to help.
>
> 1) Contact your local media and tell your story.
>
> 2) Talk to your friends and neighbors and explain more about EDS to them.
>
> 3) Send copies of the EDNF and CEDA CD-ROMs on EDS to local hospitals,
> medical clinics, and doctors' offices. If you can't afford to send the
CDs,
> send them letters and order forms for the CDs.
> CEDA EDS Learning CD-Rom Order Form:
http://www.ceda.ca/orderform.htm
> EDNF Vascular EDS CD-Rom Page:
> http://www.ednf.org/cdrombook.php
>
> 4) Promote EDS websites on search engines and medical sites. There are a
> lot of medical sites with out-dated information on Ehlers-Danlos Syndrome.
> You can help them update their information by doing an online search for
> Ehlers Danlos Syndrome, checking the sites for information, and then
> emailing the webmaster to request updated links and information be added
if
> necessary. For a worldwide list of EDS organizations and their addresses,
> click here: http://www.edstoday.org/support.htm
>
> 5) Help plan the 2005 EDS Awareness campaign by joining the EDS Awareness
> Email list and sharing your ideas with other people interested in
promoting
> awareness of Ehlers Danlos Syndrome.
> http://health.groups.yahoo.com/group/edsaware/
>
>
> To read more about the 2002 EDS Awareness Campaign, please click the link
> below to read the EDS Today article.
> http://www.edstoday.org/Awareness/2002.htm
>
> -Barb
>