> The EDS and Speech, Language, Hearing, Voice, and Swallowing Survey has
been
> published
>
> EDS Today and CEDA (Canadian Ehlers Danlos Association) are proud to
> announce that the EDS and Speech, Language, Hearing, Voice, and Swallowing
> Survey has been published. It will be on-line at the CEDA website. Check
the
> EDS Today website (www.edstoday.org) or CEDA website (www.ceda.ca) for the
> link to it. This is a volunteer effort by Bonnie, who also has EDS
herself,
> with the help of two other prominent speech language pathologists at a
local
> Milwaukee area hospital.
>
> The survey covers all aspects of speech, language, swallowing, hearing,
and
> voice disorders. Bonnie is trying to correlate the above listed possible
> problems and to the fact that they may be caused by EDS. Preliminary
> findings will help with possible funding for a larger research project.
>
> Please note that there are two pages to the survey on the net - the first
> page is general information and a consent form. The second page contains
all
> the questions and does take time to load up, so please be patient for to
> load. Also, please be sure to answer EACH question, whether it's yes, no,
or
> not applicable. The survey will automatically keep track of statistics for
> the researchers. You can add comments and elaborate about signs/symptoms.
> Please feel free to fill a survey out for each member of your family
whether
> officially diagnosed with EDS or not. To do this, after filling it out for
> the first member, click on the submit survey button, then reload the first
> webpage.
>
> The survey will be on the webpage from June 16, 2003 through September 16,
> 2003, so please fill out the survey as soon as possible. Please feel free
to
> pass this information on to other EDS lists and friends and family not on
> the net. You can contact Bonnie Heintskill at: bonnieh4455@...
for
> further information or a copy of the survey for those not on the net.
>
> The link for the survey is located at:
>
> http://www.ceda.ca/speech/