Hi Jess !
I'm personally not able to help you to find a specialized doctor but
as far as I know, you found the biggest Yahoo Group about Ehlers
Danlos so I think some of the members could give you more
informations. Maybe somebody already contacted you ...
Anyway, here are 2 other links where you can find (maybe) other
members who could help you :
Connective Tissue Issues
http://groups.yahoo.com/group/connectivetissueissues/?yguid=79814978
ehlersangel2
http://groups.yahoo.com/group/ehlersangel2/?yguid=79814978
Wish you all the Best, good luck and plenty of useful answers :o)
Sonia.
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