Hi, my name is Jessica. I'm 18 and was diagnosed (finally) in
October. I'd like to be an active member, but I don't get to use my
computer much. I'll still try. I have a question I hope someone can
help me with. I have many symptoms that need to be treated and I'm
being sent from doctor to doctor with no help. I know there is an EDS
support group, but trying to navigate all the different web pages, e-
mail addresses, and links is a bit tough for me at the moment (due to
time and physical restraints) Is there an easy way of finding a
doctor who actually knows (most of them don't) how to treat EDS? No
one is helping me and I suspect that I have to find a doctor for each
individual symptom, but even then I basically get sent away with
nothing. This is a serious problem for me. I've been searching since
I was diagnosed and no doctor (pain management, physiatrist,
orthopedic, geneticist, sleep doctor or any other) will give me the
time of day. I was never given any medication or help with pain, lack
of sleep etc. and its completely taking control of my life. Are there
doctors who specialize in EDS in the first place? Any suggestions or
help would greatly *GREATLY* be appreciated. Sorry I wrote so much
guys!
-jess in jersey