Newsletter now ready to download

Hi Everyone

It was wonderful meeting so many of you at the Glasgow LDN conference; apologies that time didn’t permit me to speak to you all at length.

This month I would like to ask you all for help:

1. I would like as many MSers that have been taking LDN for 4 months, to take part in our 2^nd survey; the survey is designed to be taken 6 monthly to give a full picture over time. The results will be published anonymously, and your details will never be passed on to a third party. You do have to register to take part and it’s free. The link is http://www.ldnresearchtrust.org/survey.asp. All data is held securely, your input will make a difference. Please take part.
2. For everyone that has been taking LDN for at least 4 months for whatever condition to add your experience on the forum, this is also very important the link is http://forum.ldnresearchtrust.org/ post your experience under the LDN section according to your condition.
3. We would love to hear from those of you that would like to share your LDN story with us for the newsletter, this can be done anonymously or we can use your name and a photo, it’s entirely up to you. All stories are edited for spelling and grammar without changing the meaning in anyway. Please email me if you want to take part, contact@....
4. For all of you that live in the UK to sign the LDN Petition http://petitions.number10.gov.uk/LowDNaltrexone/ strength is in numbers.
5. Once you have done the above please can you add the links to as many websites as possible and forward this email to everyone who qualifies to take part.
6. Silly still wants to write a book of people’s dreams to help with fund raising. If you experience strange dreams when starting LDN for any condition we would love to hear from you. We can do this without your help, you can use your name or you can write anonymously it doesn’t matter.

Together we can make a difference, we can’t do it alone!

We have strength in numbers J

I received the below in a letter from Marion, which I wanted to share with you an extract with you....

Well, I’ve been on LDN for three months now, and guess what?...

I CAN FEEL THE SOLES OF MY FEET AGAIN!.. After nearly ten years of approx 40% (variable) sensation in them, I can now feel around 70%-90% sensation most of the time (slightly less if I’ve been over doing things, but hey ho). It started about three weeks ago and it’s getting better all the time. Isn’t that exciting?! I’m truly chuffed to say the least.

It feels really odd, but fabulous of course. I’d actually forgotten what “normal” feels like so it looks like a whole new experience – and I keep giggling to myself whenever I feel the texture of my socks… or my bed sheets / carpet / flooring etc when I’m barefoot. And I can feel the temperature in them all too. Cool eh? (…er, or warm/hot lol) Bliss….And wonderfully tickly at times (but in a good way) J

LDN also seems to be (gradually) helping with my fatigue levels too – which is already making a difference to my day, in all sorts of ways. Onwards and upwards I say!

Thank you for allowing me to copy part of your letter Marion and good luck J

We all take feeling “normal” for granted until we loose it!!

The May newsletter is ready to view:

PDF magazine style: http://www.ldnresearchtrustfiles.co.uk/docs/May_2009.pdf

Text only version: http://forum.ldnresearchtrustorg/index.php?showtopic=1177

To view the conference video’s please click this links: http://glasgowldn2009.com/category/conference-sessions/

http://glasgowldn2009.com/category/conference-video-interviews/

We have more members Special Offers on moisturizing creams and Omega 3

http://www.ldnresearchtrust.org/default.asp?page_id=109

Funding rinsing - you can help by using out links with online shopping, Hypnosis CD’s, Polo Shirts, Recycled old mobile phone, ink cartridges etc. Plus would anyone like to do a tandem skydive for us? http://forum.ldnresearchtrustorg/index.php?showforum=41

Fund Raising Challenge: May Offers

Cycle London to Amsterdam 18 – 21 September 2009

Trek Jordan 10 – 14 September 2009

http://www.ldnresearchtrustfiles.co.uk/docs/Fund%20Raising%20-%20Classic%20Tours.pdf

As always thank you to all of you that have setup regular donations, without your help and support we couldn’t carry on. We have collected just over �22,000 towards Clinical Trials, no wages are taken out of the charity just the running costs which keep growing as we get bigger. If you want to make a donation or set up a regular payment, every �1 really does counts. If everyone set up even a �1 a month donation we would really be getting somewhere. Our bank details can be found. http://forum.ldnresearchtrustorg/index.php?showforum=57

A special thank you to Will Ou and Lee, for designing the LDN Conference Programme for us.

On a personal note Good Luck and Thank You to Lucy Solomon for giving me holiday cover, I hope you don’t regret it!!

Lastly, wishing you all a great summer.

Best Regards

Linda

LDN Research Trust

PO Box 1083, Buxton, Norwich NR10 5WY

Telephone: 0871 989 96 66

Registered Charity No. 1106636

Medical Advisors: Dr Bob Lawrence MRCS LRCP,Dr Tom Gilhooly MBChB MRCGP