See the comment about LDN and MS in the "We hear from you" section near the
bottom of the page.


-----Original Message-----
From: Rocky Mountain MS Center
Sent: Thursday, August 6, 2009 5:17 PM
To: dudleydelany@...
Subject: eMS News



To view this email online, paste this link into your browser:
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4877dfd2e4ddb68f

___________________________________




In this week's eMS
News
August6, 2009
Fampridine-SR (#Breaking News)

Breaking
News (#Breaking News)

Wii-habilitation
(#Living Well with MS)

Living Well with
MS (#Living Well with MS)
(#Living Well with MS)
(#Clinical%20Trials)

Nerispirdine and MS Pain
Study (#Clinical Trials)
(#ClinicalTrials)

Clinical
Trials (#Clinical Trials)

We hear from
you! (#Share your Thoughts)
Share your thoughtsand
take our survey! (#Share your Thoughts)

MS Therapies in the
Pipeline:
Fampridine-SR
Breaking News

In this week's eMS News, we continue with our series, MS Therapies in
the Pipeline.

As MS progresses, walking can become a challenge and many people with MS are
forced to use the aid of
a cane, walker or wheelchair. According to recent research, 64% - 85% of people
with MS have difficulty walking, and 70% report it to be the greatest
symptomatic challenge that they face.
Hope for these individuals may soon be available in pill form. Fampridine-SR, a
sustained-release tablet, is a selective neuronal potassium (K+) that blocks
potassium channels on the surface of nerve fibers. The idea is that by
blocking these channels, the conduction of nerve signals which travel through
nerve fibers is improved, despite the myelin damage
that characterizes MS. The improved nerve communication facilitates vital nerve
connections that are necessary for mobility.
The thought is not that Fampridine-SR will replace standard disease modifying
therapies, but rather that it will function
as an add-on symptomatic treatment option for those who have difficulty walking.
The second large Phase III clinical
trial on Fampridine-SR involved 240 individuals with relapsing remitting,
secondary-progressive, primary-progressive, and progressive-remitting MS.
The results were presented at the World Congress on Treatment and Research in
Multiple Sclerosis in Montreal, Canada, in June 2008. Investigators'
primary goal was to evaluate whether participants were able to complete the
Timed 25-Foot Walk more quickly after receiving Fampridine-SR (pre and
post-study testing was done). One hundred and twenty participants were treated
with Fampridine-SR 10mg twice a day and 119 with
placebo; all participants were permitted to continue their prescribed
immunomodulator therapies. (Cont. HERE (
http://e2ma.net/go/2278262622/2071471/77406669/31451/goto:https://app.e2ma.net/a\
pp/view:CampaignPublic/id:31451.2277049910/rid:3fc84a11d9359b1cf05b514d94f15c5d
))

Dr. Timothy Vollmer, medical director of the Rocky Mountain MS Center. Dr.
Vollmer, widely recognized as one
of the world's leading experts on MS, has been working with MS patients for more
than 20 years. He joined the Rocky Mountain MS Center in
August.
Wii-habilitation
Living Well with
MS

Playing a game of tennis or golf in the middle of the summer with blistering
temperatures and the physical drain that accompanies sports may seem like an
impossible activity for many people with MS. That, however, is
no longer the case thanks to the most recent videogame revolution the arrival
of Wii (pronounced "we").
The
Nintendo Wii, which was launched in the U.S. in 2006, is unique in that it
provides players with a wireless remote control, or for those who cannot
grip the control, a glove. Upon becoming available to the general public, Wii
became an instant hit and sold out quickly. Although it continues to be
popular, today Wii is more readily available. (Wiicont. HERE (
http://e2ma.net/go/2278262622/2071471/77406669/31451/goto:https://app.e2ma.net/a\
pp/view:CampaignPublic/id:31451.2277049910/rid:3fc84a11d9359b1cf05b514d94f15c5d
))





Nerispirdine
Clinical
Trials

This week we would once
again like to highlight the following two studies. They are limited to people
who can travel to the Rocky Mountain MS Center at Anschutz Medical
Campus in Aurora,
CO.
Nerispirdine (
http://e2ma.net/go/2278262622/2071471/77407361/31451/goto:http://files.e2ma.net/\
31451/assets/docs/nerispirdine.pdf ): This study, which will evaluate the
efficacy, safety and tolerability of nerispirdine 50 mg, 100 mg, and 200 mg, is
designed to
test this new compounds ability to help people improve their walking.To find out
more about this study, please click
HERE (
http://e2ma.net/go/2278262622/2071471/77407361/31451/goto:http://files.e2ma.net/\
31451/assets/docs/nerispirdine.pdf ).

MS Pain Study (
http://e2ma.net/go/2278262622/2071471/77406665/31451/goto:http://files.e2ma.net/\
31451/assets/docs/pain_study.pdf ): Did you know that 55% of patients experience
regular pain from their MS? The MS Pain Study is
a global research study evaluating the investigational use of an approved
non-narcotic medication, shown to be effective in nerve-related pain. To
find out more about this study, please click HERE (
http://e2ma.net/go/2278262622/2071471/77406665/31451/goto:http://files.e2ma.net/\
31451/assets/docs/pain_study.pdf ).
If you would like to see a more complete list of clinical trials occurring
at the Rocky Mountain MS Center at Anschutz Medical Campus, please click HERE (
http://e2ma.net/go/2278262622/2071471/77406664/31451/goto:http://www.mscenter.or\
g/content/view/152/189/ ).
For information on various clinical
trials throughout the United States, please visit www.clinicaltrials.gov (
http://e2ma.net/go/2278262622/2071471/77406663/31451/goto:http://www.clinicaltri\
als.gov/ ).
We hear
from you!
Share your thoughts
Help us serve you -take our survey! (
http://e2ma.net/go/2278262622/2071471/77406662/31451/goto:https://app.e2ma.net/a\
pp2/survey/31451/12084/47b44b9beb/ )

"People's stories about LDN might be just stories, but when you
multiply that by thousands of people all over the world that use it, it should
be given more credit. My husband has been using nothing but LDN for his
MS fornearly four and a half years.It`s a decision we have never regretted. When
given the choice between toxic, expensive and
ineffective injectable meds and LDN, it was not a difficult choice to make.My
husband`s neuro at UCSF prescribes it so it`s not an "underground"
thing.He has an annual MRI and blood work done.Not only has he not gotten any
new brain lesions, but many of the original ones have either
gone or are inactive.He has not had one exaserbation or any new symptoms in the
whole time.He is a 47-year-old man who works every day in
a physically demanding job and anticipates living a long life with no further
disability from the MS...As a bonus, my husband has not had one single
cold or flu for the whole time on LDN.His immune system is amazing.I belong to a
LDN yahoo group that is over 5,000 strong and all of them
will tell similar stories."
-eMS News reader
"I have been taking LDN now for about 2 years andhave experienced
good results. I am one of the few that started on 4.5mg right away. I started on
the 4.5 mg LDN because I was having a badMS attack in a new
area of my body, which was inmy right arm and right leg. After taking LDN, I
recovered quickly; that was two years ago. My depression is gone,
food digestion much better, vision improved, memory very good. I also was not
dreaming at night andnow I can dream again..."
-eMS News reader

"YEAH for YOGA as well! I started practicing yoga about 2 months ago and LOVE
IT! As the
reader(in July 23, 2009eMS News edition)stated, my muscles were starting to
stiffen and become tight. It took me awhile to get the
nerve to go to a class but it only took one and Im hooked! Yes, I have MS but MS
doesnt have me! I feel wonderful after each practice!
Taking it slow...I do sweat but I just think its the "detoxify" effects, not so
much from heat. I control my breathing, which in turn relaxes
my nervous system! I just cant tell you how much yoga has helped me and will
continue to help me with my life and my MS, in that
order!"
-eMS News reader

Have something to share?
We'd love to hear from you!
Send your comments to Bridget Blanning
(mailto:bblanning@...?subject=Share%20your%20thoughts%21)
or call (303) 788-4030 X
114
Your support is now more important than
ever.
If you appreciate the programs and services that the Rocky Mountain MS Center
offers, take a moment now and donate. Every
cent is an investment in our dedication to you and your loved ones.
Donate today! (
http://e2ma.net/go/2278262622/2071471/77406661/31451/goto:https://app.etapestry.\
com/hosted/RockyMountainMSCenter/OnlineDonation.html )


Gala, Gala, Gala!
(
http://e2ma.net/go/2278262622/2071471/77406644/31451/goto:http://www.mscenter.or\
g/index.php?option=com_events&task=view_detail&agid=179&year=2009&month=09&day=1\
2&Itemid=227 )Our2009 Gala, Havana Nights (
http://e2ma.net/go/2278262622/2071471/77406644/31451/goto:http://www.mscenter.or\
g/index.php?option=com_events&task=view_detail&agid=179&year=2009&month=09&day=1\
2&Itemid=227 ), is just around the corner. Help us tocollect auction items
by donating an item from our wish list, which isHERE (
http://e2ma.net/go/2278262622/2071471/77406658/31451/goto:http://files.e2ma.net/\
31451/assets/docs/galawishlist.pdf ).
Please
contact Sally Reed (mailto:sreed@...?subject=GalaAuctiondonation!) at
(303) 788-4030 ext. 106 for more info and
to donatean item.
Make a
difference in someone's life; volunteer your time! (
http://e2ma.net/go/2278262622/2071471/77406657/31451/goto:http://www.mscenter.or\
g/content/view/125/203/ )

We're still looking for volunteers to help withour Hydrotherapy
Program (
http://e2ma.net/go/2278262622/2071471/77406656/31451/goto:http://www.mscenter.or\
g/content/view/142/175/ ), and we need you more than ever! For more information,
please contact Michele Harrison
(mailto:dmicheleharrison@...?subject=Hydro%20volunteering) at (720)
273-7461.



Events and Educational Seminars
To see our full calendar of
events, please click HERE (
http://e2ma.net/go/2278262622/2071471/77406654/31451/goto:http://www.mscenter.or\
g/component/option,com_events/Itemid,227/ )
MS101 (
http://e2ma.net/go/2278262622/2071471/77406652/31451/goto:http://www.mscenter.or\
g/index.php?option=com_events&task=view_detail&agid=208&year=2009&month=07&day=2\
7&Itemid=227 ), aclass
for
the newly diagnosed.
Monday,August
17th
5:00-7:00 p.m.
To register, please call (303) 788-4030 ext.
100.
AConversation on MS
(
http://e2ma.net/go/2278262622/2071471/77406650/31451/goto:http://www.mscenter.or\
g/component/option,com_events/task,view_detail/agid,191/year,2009/month,08/day,1\
8/Itemid,227/ )Tuesday,August 18th
6:00 to 7:30
p.m.
Koelbel Library, Room B
5955 S. Holly St.
Littleton, CO
Please register HERE (
http://e2ma.net/go/2278262622/2071471/77406646/31451/goto:http://www.mscenter.or\
g/content/view/178/205/ )
MSYPN Summer BBQ (
http://e2ma.net/go/2278262622/2071471/77406648/31451/goto:http://www.mscenter.or\
g/component/option,com_events/task,view_detail/agid,224/year,2009/month,08/day,2\
0/Itemid,227/ )
Everyone is
welcome!
Please note date correction!
Thursday,August 20th
6 p.m.
Englewood, CO
To RSVP, please call (303) 788-4030 or email
Bridget Blanning (mailto:bblanning@...?subject=MSYPN BBQ).
Gadgets, Gizmos and Strategies
Seminar (
http://e2ma.net/go/2278262622/2071471/77406647/31451/goto:http://www.mscenter.or\
g/component/option,com_events/task,view_detail/agid,216/year,2009/month,08/day,2\
9/Itemid,227/ )
Saturday, August 29th
9am to 2pm
Jefferson County
Fairgrounds
15200 W. 6th Ave,
Golden, CO
To register, please click HERE (
http://e2ma.net/go/2278262622/2071471/77406646/31451/goto:http://www.mscenter.or\
g/content/view/178/205/ ).
Fatigue Management (
http://e2ma.net/go/2278262622/2071471/77406645/31451/goto:http://www.mscenter.or\
g/content/view/146/181/ )
6-week course
Begins Sept. 3rd
5:00 to 7:00p.m.
For people who can travel to our Englewood, CO
location.
To register, please call (303) 788-4030 ext. 103.
Havana Nights: 2009 MS Center
Gala (
http://e2ma.net/go/2278262622/2071471/77406644/31451/goto:http://www.mscenter.or\
g/index.php?option=com_events&task=view_detail&agid=179&year=2009&month=09&day=1\
2&Itemid=227 )
Saturday, Sept. 12th
Infinity Park Events Center
For information on registration or sponsorship
opportunities, please contact Sally
Reed (mailto:sreed@...?subject=Gala%20Sponsorship)
at (303) 788-4030 ext. 106.
Other
Resources
(
http://e2ma.net/go/2278262622/2071471/77406642/31451/goto:http://www.mscenter.or\
g/content/view/141/174/ )
KADEP (
http://e2ma.net/go/2278262622/2071471/77406642/31451/goto:http://www.mscenter.or\
g/content/view/141/174/ ), our specialized adult day
program, offers clientsover65 recreational activities weekly. Meet participants
and getdaily updates atthe KADEP
blog (
http://e2ma.net/go/2278262622/2071471/77406641/31451/goto:http://adventuresatkad\
ep.blogspot.com/ ).
The Rocky Mountain MS Center Tissue Bank (
http://e2ma.net/go/2278262622/2071471/77406639/31451/goto:http://www.mscenter.or\
g/content/view/153/190/ )
is actively seeking donors - both people with MS and those without. Help
researchers as they
work toward discovering a cure to MS.Find out more HERE (
http://e2ma.net/go/2278262622/2071471/77406639/31451/goto:http://www.mscenter.or\
g/content/view/153/190/ ).
MSYPN (
http://e2ma.net/go/2278262622/2071471/77406638/31451/goto:http://www.mscenter.or\
g/content/view/124/202/ ) - our Young Professionals Network - wants you! For
more information, please contact Bridget Blanning
(mailto:bblanning@...?subject=MSYPN) at
(303) 788-4030 ext. 114.
NARCOMS (
http://e2ma.net/go/2278262622/2071471/77406637/31451/goto:http://www.mscare.org/\
cmsc/CMSC-NARCOMS-Information.html ) is an active national registry of over
34,000
individuals with MS.Help spread the word by telling others about this important
project. To register, please click
HERE (
http://e2ma.net/go/2278262622/2071471/77406636/31451/goto:http://www.cmscnarcoms\
.org/enroll ).


Rocky Mountain Multiple Sclerosis Center
701 East Hampden Avenue, Suite 420 | Englewood, Colorado 80113-2760
Administration 303-788-4030 | Fax 303-788-5418 | www.mscenter.org
___________________________________


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