-----Original Message-----
From: hope4joyce
Sent: Thursday, May 29, 2008 11:40 PM
To:
LDN_Users@yahoogroups.com
Subject: [LDN_Users] Update from Vicki Finlayson on her LDN Awareness Walk
Hello All,
The below is an update from Vicki Finlayson on her recent
courageous 53 mile walk to California's State Capital in Sacramento in
order to boost awareness of LDN and the meeting she had with the
Governor's top 2 advisors. For more information about Vicki, please
feel free to visit Sammy Jo's Website (
http://www.ldners.org/
<
http://www.ldners.org/> ).
Thanks again to Vicki for fighting the LDN battle for many
patients (with many different diseases) that will be helped by her
efforts! Vicki challenges all of us below to also get involved by
writing to our elected officials, sending our LDN stories, and asking
for Clinical Trials Funding.
Three Cheers for Vicki! ~~ Joyce
".....Thank you for all your help and posts. The walk went very well,
despite the 95-100 degree temps. This week we are looking at rain and
temps between 62-70 quite a difference, somebody surely was testing LDN
and me! The heat didn't bother me a bit which for me was a biggie,
before I started LDN if I went outside for 10 minutes I would have to go
inside and lie down, the heat intensified my pain. My legs were strong
and I was even more surprised when evening rolled around and they still
felt fine. I will challenge any doctor any day when he makes a dumb
statement that LDN doesn't work or is placebo, there is no way I could
have done this if LDN were placebo!!!!!
Unfortunately Governor Schwarzenegger wasn't able to meet me, he is
working on our budget, but I did meet with 2 of his top advisors. Both
men were very receptive asked questions and were surprised at the
information I was able to share with them. They were somewhat surprised
that our doctors weren't better educated on "new" treatments and
therapies that held great potential. They were also surprised that with
LDN's potential and benefit that it wasn't made more available. I told
them I spoke with one of our top Gastroenterologists and his comment to
me was they didn't have time to do much reading and that they drugs they
prescribed were FDA approved drugs that the drug reps who sat across
from them told them about. I told them both it was a shame that the
dollar was more important than our lives that was criminal.
I told them the Governor is always telling us "California needs to lead
the way" well here is a perfect opportunity and if we pass this up "we"
aren't doing our job and are loosing credibility as a so called "great
state". They said they will research what avenues California has as far
as funding, I told them it shouldn't stop with just California, Governor
Schwarzenegger is in the position both in the entertainment and sports
industry to rally some interest. The money needed to come from the
private sector as well as the public. And since the entertainment
industry is always funding one thing or another this was a cause well
worth funding. The benefits of helping millions not only in the US but
around the world should no longer be ignored.
I put together a nice brochure for them with the published research, the
trials and all the different diseases LDN has helped. We talked about
the cancer, HIV/AIDS, Parkinson's and of course MS that LDN has helped.
So the need for funding was extremely important. If more people knew
about LDN and the possibilities it holds and knew that it was a money
issue that the drug companies were more interested in they would be
furious. Michael Moore was right our Government doesn't fear us, maybe
we should scare them a bit:)
I was told to follow up in a couple of weeks and we could discuss what
they found out. I asked them both to please discuss this with the
Governor, so many people say they will only to find out that nothing was
mentioned, this is not right, you tell the mothers who 's child has
cancer go home there is nothing more we can do go home and watch them
die, or we are sorry you are in a wheelchair but the American people
care more about the dollar and that the disabled don't have a role in
our society. It makes no sense why we are so ignorant.
Fox 40 came out and did a short interview, and we have been receiving
phone calls and emails but still more people need to know about LDN. I
have made copies of Dr. Zagon and Dr. Smiths interview and have sent the
newspaper articles about the walk to about 28 different TV stations. I
also have contacted Congressman Lungrens office again, two of his
advisors who I have had lunch with before, met me when I arrived at the
Capitol. I have asked for another meeting with the Congressman, he will
be back in California soon and Marilyn will let me know. I also am
contacting more of our State Representatives here in California with the
interview and article in hopes they also will join this cause.
We need to contact our officials, they work for US, tell them to find
the necessary funding for this research. We need to make some NOISE
allot of it!!!!!!
Sam has all the pictures she is going to put them together and, I
believe put them along with the radio and TV interview on YouTube. When
this is completed I'm sure it will be on her site and the other boards
for everyone to see. I appreciate what everyone has done and all the
kind words and support I received while I did this "crazy walk". I did
it because I knew with all the thousands of us on LDN we can make a
difference and somebody will listen:)
Thank you again for everything, while walking I was thinking of all the
wonderful people I have meet in these 2 1/2 years and I must say you
all are a terrific bunch!!!!!
Take care
Vicki....."
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