This group is generally for parents who do not have epidermolysis bullosa but who do have a child or children with this rare skin disorder. EB free parents who have children with this disorder often never knew EB existed until they had a child born with it. Wether your child has a mild or severe type of EB, we as EB free parents face certain challenges in raising a child who has it. Certain days are more difficult than others and it is sometimes very difficult to keep a positive attitude. This group is designed for EB free parents coping with similar issues to be able to support and share with one another openly and freely. We all need one another's support and sometimes loose sight of a positive approach to parenting a child with this disorder. Until a cure for EB is found, we must learn to teach both ourselves and our children, to cope with this disorder in a positive manner as possible. We all could use a good "PEP" talk now and then to keep our chins up! Don't you think?

PLEASE NOTE: This group is open to ANYONE and not just limited to parent's who have EB children. Adults whom have EB have been particularly helpful to us parents of EB children and we welcome anyone who would like to help or learn more about EB.

WE ARE CAPABLE OF GREAT THINGS WHEN UNITED TOGETHER.