This is a support group for individuals, parents, and families with Epidermolysis Bullosa. We welcome every type of EB in this group.
We will be covering topics about wound care, pain managment, surgeries, medical insurance, and other things that can and do relate to EB, as well as day to day things about our families, lives, and children. This is another place where we can pool resources, and vent about frustrations, and talk about the wonderous things happening in our families lives. Every person is valued, and every insight honored.
Due the the nature of a support group, the will be no flaming, or derogatory remarks towards other members, or cross-flaming about things happening in other groups. Information given here in this forum is not to be shared elsewhere, for any reason. This privacy clause is crutial to some, and gives us all the freedom of sharing news and asking potentally embarrassing questions with out the concern of it being broadcasted elsewhere.
While there may be differances of opinion, and even differances in religions and beliefs, we are united for a common cause, to be supportive of our EB Families.
Welcome to our EB Family!