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ebfamilies · EB Families

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Group Information

  • Members: 142
  • Category: Support
  • Founded: Sep 14, 2003
  • Language: English
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Description

This is a support group for individuals, parents, and families with Epidermolysis Bullosa. We welcome every type of EB in this group.

We will be covering topics about wound care, pain managment, surgeries, medical insurance, and other things that can and do relate to EB, as well as day to day things about our families, lives, and children. This is another place where we can pool resources, and vent about frustrations, and talk about the wonderous things happening in our families lives. Every person is valued, and every insight honored.

Due the the nature of a support group, the will be no flaming, or derogatory remarks towards other members, or cross-flaming about things happening in other groups. Information given here in this forum is not to be shared elsewhere, for any reason. This privacy clause is crutial to some, and gives us all the freedom of sharing news and asking potentally embarrassing questions with out the concern of it being broadcasted elsewhere.

While there may be differances of opinion, and even differances in religions and beliefs, we are united for a common cause, to be supportive of our EB Families.

Welcome to our EB Family!

Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2013 3 5 7 2 2
2012 5 6 5 4 6 6 2 3 1 4 6
2011 10 9 4 5 4 6 7 6 6 13 6 6
2010 17 11 5 74 22 22 14 6 9 16 6 9
2009 84 48 87 43 23 23 20 13 28 19 17 12
2008 73 52 65 46 61 123 57 80 44 33 13 34
2007 125 229 122 119 96 84 105 117 190 182 65 55
2006 253 291 246 281 252 139 146 197 86 122 101 127
2005 233 318 393 230 194 396 737 549 369 513 245 315
2004 578 618 389 538 552 311 384 419 375 335 302 323
2003 560 455 348 613

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