Hi Lisa,
We moved to B'ville when our son was already out of school, so I don't know
anything about the school here. Let me know if you want and I can ask around.
Ken
--- In easternokautism@yahoogroups.com, Lisa Dolezal <Duzzall@...> wrote:
>
>
> Hi
> We may be transferred to the Bartlevilles area. I have a 5 year old with
> PDD-NOS. I'm hoping to get information about school districts and such. :D
>
> Thank you,
> Lisa Dolezal
>
From:
easternokautism@yahoogroups.com [mailto:easternokautism@yahoogroups.com] On Behalf Of duzzall Sent: Wednesday, July 29, 2009
4:46 PM To:
easternokautism@yahoogroups.com Subject: [easternokautism]
Recommendations
Hi
We may be transferred to the Bartlevilles area. I have a 5 year old with
PDD-NOS. I'm hoping to get information about school districts and such. Any
recommendation would be helpful. :D
Hi
We may be transferred to the Bartlevilles area. I have a 5 year old with
PDD-NOS. I'm hoping to get information about school districts and such. Any
recommendation would be helpful. :D
Thank you,
Lisa Dolezal
Hi
We may be transferred to the Bartlevilles area. I have a 5 year old with
PDD-NOS. I'm hoping to get information about school districts and such. :D
Thank you,
Lisa Dolezal
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====================
This message was posted by a fellow group member who uses Grouply instead of email to access this group. Grouply blocks additional invitations from being sent to this group by anyone for 30 days. Group owners can permanently block future invitations. For more on how Grouply maintains privacy and protects you, see http://blog.grouply.com/protect/ .
Story:
Horses help children develop wings
Several of the children are giddy with excitement, while others look like they
are at peace as they sit atop horses and ponies that are being led around a
pasture at Circle L Ranch north of Muldrow. But the horseback riding is more
than fun - it is therapy for children, who on first glance appear to be like any
other child.
Once they dismount from the horses, bystanders may notice subtle differences
that set them apart from their peers. They may be slower moving, or they may not
emit the frenetic activity that seems to define many children their age.
For more of this story, click on or type the URL below:
http://www.sequoyahcountytimes.com/articles/2008/05/02/news/afront.txt
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I hope all of you are having a wonderful Christmas! It has been a
wonderful year and I want to thank all of you who have participated in
one of the support groups in Muskogee, Grove, Bartlesville, and
Coweta. I also appreciate our group leaders, Kim, Chris and Gina!
Thanks for all that you do!
The Hope Kids Therapy Center in Muskogee is getting very busy! It is
awesome seeing the progress that many of the children are making. I'd
like to extend a special thanks to our board members, Kim Brooks, Vicki
Garrison, Dr. Cindy Durr, Sherry Bias, Tanya Martin, Chris Embry, Dr.
Andrea Dudley, and Brandy Buchanan. Without your help, the center
would not be a reality. I'd also like to thank the Muskogee Rotary
Club for the grant they provided which funded our therapy equipment and
the playground equipment which will be set up when the weather gets
warm enough to put up the fencing around it.
A special thanks also to the Cherokee Nation Head Start for the
donation of playground equipment and to the Howard family of Ft Gibson
and their friends for taking the time to paint and spruce it up! It
looks awesome!
Also, while I'm thanking everyone, I don't want to forget to thank
Onward and Upward, Inc. owned by occupational therapist, Patty
Daniels. SHe was willing to provide staff for our center, which
included hiring speech therapists also. Thanks so much to you and your
staff!
I am looking forward to an even greater year in 2008. I hope the year
will mean even more progress for our kids.
Also, keep your calendar's open for May 22nd! THe Cherokee Nation
WIngs Program will be co-sponsoring a 5K for the Hope Foundation to be
held in Muskogee. We'd love to have all of you come out and
run/walk/volunteer, etc. I'll send out more information as the date
draws closer. Take care!
Christi Kellogg
The best there is in Tulsa...or probably anywhere...is Judy McCarter.
I don't know if she's taking new patients right now...but I can promise
she's the best you'll ever find. If you would like her number, e-mail
me privately and I'll send it to you.
--- In easternokautism@yahoogroups.com, "Cheryl" <albummaker@...> wrote:
>
> Hello--Just checking to see if anyone could recommend a good pediatric
> Occupational Therapy therapist/practice in Tulsa.
>
> Thank you for the info, Cheryl
>
I've heard that Therapy Time is really good. I don't have the address handy,
but can find it, if you are unable to locate it. I really wouldn't recommend
Therapyworks. Their staff turnover is high and just when your child gets
comfortable, they'll change staff. Hope this helps!
---- Cheryl <albummaker@...> wrote:
> Hello--Just checking to see if anyone could recommend a good pediatric
> Occupational Therapy therapist/practice in Tulsa.
>
> Thank you for the info, Cheryl
>
>
>
Hello--Just checking to see if anyone could recommend a good pediatric
Occupational Therapy therapist/practice in Tulsa.
Thank you for the info, Cheryl
This is so awesome! It made me cry! That is so wonderful that UPS would do
this for him and for your family! I will be forwarding this on to everyone on
my e-mail list.
---- "edalgleish@..." <edalgleish@...> wrote:
> CHECK OUT CLAY'S UPS STORY!
>
>
> ~Alison (Wife to the SuperHusband/SuperDad/SuperCop Eric;
> Mommy to the SUPERKIDS: Kristen, Lauren, Courtney, Clay, Ryan,
> and three precious babies who have danced with angels, and have already seen
Jesus' face.)
>
> ---------- Forwarded Message ----------
> http://www.zwire.com/site/news.cfm?brd=2754&Nav_Sec=77223
My daughter is 7 and she sees dr. harley morgan in tulsa. he is a
ped. neurologist and she has seen him since she was about 8 mo
old.... he is absolutely wonderful... the first time i met him i
wasnt sure if i liked him... he wasnt rude or anything just very
matter of fact... but then i thought he is a ped. neuro and deals
with childrens brain all day... since then i couldnt imagine her
going to anyone else... we have dealt with so much with my daughter
and he has been wonderful..... let me know if you want any info....
i have to go to my moms to check my email so i only get on here once
a week or so... but i always check everything.. good luck... rachel
--- In easternokautism@yahoogroups.com, "oktidbit" <oktidbit@...>
wrote:
>
> Hi everyone, its Marty again looking for help as always. I still
am
> looking for another Doctor to take Britney too. I am fed up. I
have a
> call into the OU Medical Center in OKC...they will send me paper
work
> to fill out but they are saying that Sooner Care may not pay for a
> second opinion. Anyway.....my question is, does anyone know of any
> other doctors around the area either a Developmental Specialist,
or a
> Neurologist that accepts soonercare that I could possibily go to.
Any
> help would be helpful. I missed the last meeting, an update from
> me...I won't be moving out of state. So I will still be able to be
> involved. Can you please update me as to the birthday celebration,
and
> anything I can do to help prepare, please let me know as I am not
> working anymore, well not outside the home anyway. I think I stay
> busier now that I don't have a "job". Hope all is well with
everyone.
> thanks for your input.
> Marty....Britney's mom in Muskogee
>
~Alison (Wife to the SuperHusband/SuperDad/SuperCop Eric; Mommy to the SUPERKIDS: Kristen, Lauren, Courtney, Clay, Ryan, and three precious babies who have danced with angels, and have already seen Jesus' face.)
Hi everyone! It's been awhile since anyone has posted. I'd love to
get this group going again. I'd love to hear updates on how
everyone's kids are doing, any new treatments you have tried, etc.
We are excited to have the Hope Kids Therapy Center open in
Muskogee. We opened in August and are already very busy. We have an
occupational therapist and a speech therapist and are already in need
of more staff!
The Muskogee group had a awesome workshop last Monday on Mentoring
other families. We had 14 people present and learned a lot!
The Coweta group is doing very well. If you know of anyone in the
Broken Arrow area, encourage them to check out this group. It is
within 10 minutes of Broken Arrow. For more information, check out
the Hope Foundation website at www.easternokautism.org.
Also, Gina's group in Grove is going well. They just celebrated
their one year anniversary recently with a balloon release.
I haven't heard an update from the Bartlesville group lately. I know
Kim has been very busy! Hope everything is going well!
I'd love to hear from everyone again!
Christi Kellogg
"Parent-to-Parent Mentorship in Bartlesville, OK"
Event Date: 10/27/2007
Start Time: 09:00
Ending Time: 13:00
Event Description:
This half-day course is a collaboration with the Oklahoma Family
Network (OFN), Oklahoma's parent-to-parent program for families
raising children with special health care needs.
The OFN links trained parent mentors to families who are just
starting out raising a child who has developmental delays, medical
needs or a disability. Support from a mentor is available whether the
child is currently in an Oklahoma hospital or living at home.
Mentors are not professional counselors or therapists, but rather
experienced family members familiar with the emotions, fears and
realities that raising a child can present. Many of us with young
children need the support of someone who has been there, done that.
This course will teach parents about effective parent-to-parent
mentorship, communication, conflict resolution and more. In parenting
a child who has special needs, one can often feel isolated and
overwhelmed. The program is simple -- it is a relationship based on I
know, I understand and I care.
For More Information:
Time Of Event: 9:00 am - 1:00 pm
Registration Contact: Judie Grove
Email: stars@...
Phone: 405-271-1836
City: Bartlesville,
State: OK
Please go to http://oasis.ouhsc.edu and download the registration flyer
for the FREE One Day On The Road Family Perspective Conference to be
held Friday March 9th, 2007.
It will be held at Tri-County Tech Center from 8:30-3. RSVPs are due
Feb. 23rd.
Good to hear from you too. Hope you have been doing well.
The school district has not contacted me even one time since I began homeschooling Carter. They offered us nothing. Not even a "is there anything more that we can do to help change this"! I applied for my unemployment and have been denied 2 times. First denial - I didn't quit my job for good reason (even though I sent them almost 80 pages of complaints, etc. that I had made against the school). The second denial - I didn't give the school enough time to try to rectify the situation - is a year not enough time? George, do you just advocate for disabled children or do you take on actual court cases for children like Carter against schools? I am so tempted to take my case to court. This school district has literally stolen from my son. I have been told so many times that if
someone doesn't stand up and do something that it will just continue to happen. I don't know, anyway . . . I don't get the news letter I don't believe so send it to me if you can. Thanks!
Gina
George Mccaffrey <george@...> wrote:
Gina,
Good to hear from you. I don’t have any ideas at this time, but I’ll keep you in mind.
Is the District providing anything for Carter, like related services (OT, PT, Speech, etc?). Let me know please because Districts are still responsible for providing related services to home schooled kids.
Are you a member of any home school organization? There are some. Click on the link concerning home schooling in my newsletter, “Special Needs News”. If you have not been receiving the newsletter, let me know.
I would really like to hear from you.
George
From: easternokautism@yahoogroups.com [mailto:easternokautism@yahoogroups.com] On Behalf Of Gina Dollarhide Sent: Saturday, January 20, 2007 7:48 PM To: easternokautism@yahoogroups.com Subject: [easternokautism] Work from home
Hey everyone! I hope that you all are making it through the weather okay. I am home-schooling Carter now
and am looking for some work to do from my home. Possibly transcription or something. If anyone knows of anything, please let me know. Thanks! Gina
Good to hear from you. I don’t
have any ideas at this time, but I’ll keep you in mind.
Is the District providing anything
for Carter, like related services (OT, PT, Speech, etc?). Let me know please
because Districts are still responsible for providing related services to home
schooled kids.
Are you a member of any home
school organization? There are some. Click on the link concerning home
schooling in my newsletter, “Special Needs News”. If you have not
been receiving the newsletter, let me know.
I would really like to
hear from you.
George
From:
easternokautism@yahoogroups.com [mailto:easternokautism@yahoogroups.com] On Behalf Of Gina Dollarhide Sent: Saturday, January 20, 2007
7:48 PM To:
easternokautism@yahoogroups.com Subject: [easternokautism] Work
from home
Hey everyone! I hope that you all are
making it through the weather okay. I am home-schooling Carter now and am
looking for some work to do from my home. Possibly transcription or
something. If anyone knows of anything, please let me know.
Thanks! Gina
Hey everyone! I hope that you all are making it through the weather okay. I am home-schooling Carter now and am looking for some work to do from my home. Possibly transcription or something. If anyone knows of anything, please let me know. Thanks! Gina
Thanks for the heart warming, yet informative
message.
George McCaffrey
From: easternokautism@yahoogroups.com
[mailto:easternokautism@yahoogroups.com] On
Behalf Of Gina Sue Dollarhide Sent: Thursday, October 26, 2006
10:28 PM To:
easternokautism@yahoogroups.com Subject: [easternokautism]
HOLIDAYS AND AUTISM
HEY
EVERYONE! I FOUND THIS "LETTER" THE OTHER DAY AND THOUGHT
MAYBE - JUST POSSIBLY - SOME
OF YOU JUST MIGHT SHARE THIS SAME PROBLEM. IT IS A
GREAT "LETTER" THAT IS READ FROM THE CHILDS POINT OF VIEW
AND PERSONALLY, I THINK IT HITS THE "NAIL ON THE
HEAD"!!
SEE
YA! GINA DOLLARHIDE
OR BETTER
KNOWN AS CARTER'S MOM!!!
Dear Family
and Friends:
I
understand that we will be visiting each other for the holidays this year.
Sometimes these visits can be very hard for me, but here is some information
that might help our visit to be more successful.
As you probably know, I am challenged by a hidden disability called Autism or
what some people refer to as a pervasive developmental disorder (PDD).
Autism/PDD is a neurological disorder which makes it hard for me to
understand the environment around me. I have barriers in my brain that you
can't see but which make it difficult for me to adapt to my surroundings.
Sometimes I may seem rude and abrupt, but it is only because I have to try so
hard to understand people and at the same time, make myself understood.
People with autism have different abilities: some may not speak, some write
beautiful poetry, some can hardly hold a pencil, others are whizzes in math
or have difficulty making friends. We are all different and need various
degrees of support.
Sometimes when I am touched unexpectedly, it might feel painful and make me
want to run away. I get easily frustrated, too. Being with lots of other
people is like standing next to a moving freight train and trying to decide
how and when to jump aboard. I feel frightened and confused a lot of the
time, like you would if you landed on an alien planet and didn't understand
how the inhabitants communicated. This is why I need to have things the same
as much as possible. Once I learn how things happen, I can get by okay. But
if something, anything changes, then I have to relearn the situation all over
again! It is very hard.
When you try to talk to me, I often can't understand what you say because
there is a lot of distraction around. I have to concentrate very hard to hear
and understand one thing at a time.
You might think I am ignoring you, I am not. Rather, I am hearing everything
and not knowing what is most important to respond to. Holidays are
exceptionally hard because there are so many different people, places and
things going on that are out of my ordinary realm. This may be fun and
adventurous for most people, but for me, it's very hard work and can be
extremely stressful.
I often have to get away from all the commotion to calm down. It would be
great if you had a private place set up to where I could retreat. If I cannot
sit at the meal table, do not think I am misbehaved or that my parents have
no control over me. Sitting in one place for even 5 minutes is often
impossible for me. I feel so antsy and overwhelmed by all the smells, sounds,
and people--I just have to get up and move about. Please don't hold up your
meal for me, go on without me and my parents will handle the situation the
best way they know.
Eating in general is hard for me. If you understand that autism is a sensory
processing disorder, it's no wonder eating is a problem! Think of all the
senses involved with eating: sight, smell, taste, touch AND all the
complicated mechanics that are involved with chewing and swallowing that a
lot of people with autism have trouble with. I am not being
picky. I literally cannot eat certain foods as my sensory system and/or
oral motor coordination are impaired. Sometimes, I may even become
nauseated.
Don't be disappointed if mommy hasn't dressed me in starch and a tie. It's
because she knows how much stiff clothes can drive me buggy! I have to feel
comfortable in my clothes or I will just be miserable! TempleGrandin,
a very smart adult with autism, has taught people that when she had to wear
stiff petticoats as a child, she felt like her skin was being rubbed with
sandpaper. I often feel the same way in certain clothes.
When I go to someone else's house, I may appear bossy and controlling. In a
sense, I am being controlling because that is how I try to fit into the world
around me (which is so hard for me to figure out!) Things have to be done in
a way I am familiar with or else I might get confused and frustrated. It
doesn't mean you have to change the way you are doing things just please be
patient with me and understanding of how I have to cope...mom and dad have no
control over how my autism makes me feel inside.
People with autism often have little things that they do to help themselves
feel more comfortable. The grown ups call it "Self regulation," or
"stimming'. I might hum, flick my fingers in my face; repeat things over
and over or any number of different things. I am not trying to
be disruptive or weird. Again, I am doing what I have to do for my brain to
adapt to your world.
Sometimes I cannot stop myself from talking, singing, or partaking in an
activity. The grown ups call this "perseverating" which is kind of
like self regulation or stimming. I do this only because I have found
something to occupy myself that makes me feel comfortable, and I don't want
to come out of that comfortable place and join your hard-to-figure-out-world.
Perseverative behaviors are good to a certain degree because they help me
calm down. Please be respectful to my mom and dad if they let me
"stim" for awhile as they know me best and what helps to calm me.
Remember that my mom and dad have to watch me much more closely than the
average child. This is for my own safety, preservation of your possessions,
and to facilitate my integration with you.. It hurts my parents' feelings to
be criticized for being over protective or condemned for not watching me
close enough. They are human and have been given an assignment intended for
saints. My parents are good people and need your support.
Holidays are filled with sights, sounds, and smells. The average household is
turned into a busy, frantic, festive place. Remember that this may be fun for
you but it's very hard work for me to conform. If I fall apart or act out in
a way that you consider socially inappropriate, please remember that I don't
possess the neurological system that is required to follow your rules.
I am a unique person--an interesting person. I will find my place at this
celebration that is comfortable for us all as long as you'll try to view the
world through my eyes!"
I love the letter, but it is especially comforting to me to know that I am not the only one in the world that has a whole new view of the "holiday season" stresses!
~Alison (Wife to the SuperHusband/SuperDad/SuperCop Eric; Mommy to the SUPERKIDS: Kristen, Lauren, Courtney, Clay, Ryan, and three precious babies who have danced with angels, and have already seen Jesus' face.)
Awesome Gina! Thank you for posting. I have already emailed to
family. i think it will be a great tool.
--- In easternokautism@yahoogroups.com, "Gina Sue Dollarhide"
<msdollarhide@...> wrote:
>
>
> HEY EVERYONE! I FOUND THIS "LETTER" THE OTHER DAY AND THOUGHT
MAYBE -
> JUST POSSIBLY - [:)] SOME OF YOU JUST MIGHT SHARE THIS SAME
PROBLEM.
> IT IS A GREAT "LETTER" THAT IS READ FROM THE CHILDS POINT OF VIEW
AND
> PERSONALLY, I THINK IT HITS THE "NAIL ON THE HEAD"!!
>
> SEE YA! GINA DOLLARHIDE
>
> OR BETTER KNOWN AS CARTER'S MOM!!! [:D]
>
>
>
>
> Dear Family and Friends:
>
> I understand that we will be visiting each other for the holidays
this
> year. Sometimes these visits can be very hard for me, but here is
some
> information that might help our visit to be more successful.
>
> As you probably know, I am challenged by a hidden disability called
> Autism or what some people refer to as a pervasive developmental
> disorder (PDD). Autism/PDD is a neurological disorder which makes it
> hard for me to understand the environment around me. I have
barriers in
> my brain that you can't see but which make it difficult for me to
adapt
> to my surroundings.
>
> Sometimes I may seem rude and abrupt, but it is only because I have
to
> try so hard to understand people and at the same time, make myself
> understood. People with autism have different abilities: some may
not
> speak, some write beautiful poetry, some can hardly hold a pencil,
> others are whizzes in math or have difficulty making friends. We
are all
> different and need various degrees of support.
>
> Sometimes when I am touched unexpectedly, it might feel painful and
make
> me want to run away. I get easily frustrated, too. Being with lots
of
> other people is like standing next to a moving freight train and
trying
> to decide how and when to jump aboard. I feel frightened and
confused a
> lot of the time, like you would if you landed on an alien planet and
> didn't understand how the inhabitants communicated. This is why I
need
> to have things the same as much as possible. Once I learn how things
> happen, I can get by okay. But if something, anything changes, then
I
> have to relearn the situation all over again! It is very hard.
>
> When you try to talk to me, I often can't understand what you say
> because there is a lot of distraction around. I have to concentrate
very
> hard to hear and understand one thing at a time.
>
> You might think I am ignoring you, I am not. Rather, I am hearing
> everything and not knowing what is most important to respond to.
> Holidays are exceptionally hard because there are so many different
> people, places and things going on that are out of my ordinary
realm.
> This may be fun and adventurous for most people, but for me, it's
very
> hard work and can be extremely stressful.
>
> I often have to get away from all the commotion to calm down. It
would
> be great if you had a private place set up to where I could
retreat. If
> I cannot sit at the meal table, do not think I am misbehaved or
that my
> parents have no control over me. Sitting in one place for even 5
minutes
> is often impossible for me. I feel so antsy and overwhelmed by all
the
> smells, sounds, and people--I just have to get up and move about.
Please
> don't hold up your meal for me, go on without me and my parents will
> handle the situation the best way they know.
>
> Eating in general is hard for me. If you understand that autism is a
> sensory processing disorder, it's no wonder eating is a problem!
Think
> of all the senses involved with eating: sight, smell, taste, touch
AND
> all the complicated mechanics that are involved with chewing and
> swallowing that a lot of people with autism have trouble with. I
am not
> being picky. I literally cannot eat certain foods as my sensory
system
> and/or oral motor coordination are impaired. Sometimes, I may even
> become nauseated.
>
> Don't be disappointed if mommy hasn't dressed me in starch and a
tie.
> It's because she knows how much stiff clothes can drive me buggy! I
have
> to feel comfortable in my clothes or I will just be miserable!
Temple
> Grandin, a very smart adult with autism, has taught people that
when she
> had to wear stiff petticoats as a child, she felt like her skin was
> being rubbed with sandpaper. I often feel the same way in certain
> clothes.
>
> When I go to someone else's house, I may appear bossy and
controlling.
> In a sense, I am being controlling because that is how I try to fit
into
> the world around me (which is so hard for me to figure out!) Things
have
> to be done in a way I am familiar with or else I might get confused
and
> frustrated. It doesn't mean you have to change the way you are doing
> things just please be patient with me and understanding of how I
have to
> cope...mom and dad have no control over how my autism makes me feel
> inside.
>
> People with autism often have little things that they do to help
> themselves feel more comfortable. The grown ups call it "Self
> regulation," or "stimming'. I might hum, flick my fingers in my
face;
> repeat things over and over or any number of different things. I am
not
> trying to
> be disruptive or weird. Again, I am doing what I have to do for my
brain
> to adapt to your world.
>
> Sometimes I cannot stop myself from talking, singing, or partaking
in an
> activity. The grown ups call this "perseverating" which is kind of
like
> self regulation or stimming. I do this only because I have found
> something to occupy myself that makes me feel comfortable, and I
don't
> want to come out of that comfortable place and join your
> hard-to-figure-out-world. Perseverative behaviors are good to a
certain
> degree because they help me calm down. Please be respectful to my
mom
> and dad if they let me "stim" for awhile as they know me best and
what
> helps to calm me.
>
> Remember that my mom and dad have to watch me much more closely
than the
> average child. This is for my own safety, preservation of your
> possessions, and to facilitate my integration with you. It hurts my
> parents' feelings to be criticized for being over protective or
> condemned for not watching me close enough. They are human and have
been
> given an assignment intended for saints. My parents are good people
and
> need your support.
>
> Holidays are filled with sights, sounds, and smells. The average
> household is turned into a busy, frantic, festive place. Remember
that
> this may be fun for you but it's very hard work for me to conform.
If I
> fall apart or act out in a way that you consider socially
inappropriate,
> please remember that I don't possess the neurological system that is
> required to follow your rules.
>
> I am a unique person--an interesting person. I will find my place at
> this celebration that is comfortable for us all as long as you'll
try to
> view the world through my eyes!"
>
HEY EVERYONE! I FOUND THIS "LETTER" THE OTHER DAY AND THOUGHT MAYBE - JUST POSSIBLY - SOME OF YOU JUST MIGHT SHARE THIS SAME PROBLEM. IT IS A GREAT "LETTER" THAT IS READ FROM THE CHILDS POINT OF VIEW AND PERSONALLY, I THINK IT HITS THE "NAIL ON THE HEAD"!!
SEE YA! GINA DOLLARHIDE
OR BETTER KNOWN AS CARTER'S MOM!!!
Dear Family and Friends:
I understand that we will be visiting each other for the holidays this year. Sometimes these visits can be very hard for me, but here is some information that might help our visit to be more successful.
As you probably know, I am challenged by a hidden disability called Autism or what some people refer to as a pervasive developmental disorder (PDD). Autism/PDD is a neurological disorder which makes it hard for me to understand the environment around me. I have barriers in my brain that you can't see but which make it difficult for me to adapt to my surroundings.
Sometimes I may seem rude and abrupt, but it is only because I have to try so hard to understand people and at the same time, make myself understood. People with autism have different abilities: some may not speak, some write beautiful poetry, some can hardly hold a pencil, others are whizzes in math or have difficulty making friends. We are all different and need various degrees of support.
Sometimes when I am touched unexpectedly, it might feel painful and make me want to run away. I get easily frustrated, too. Being with lots of other people is like standing next to a moving freight train and trying to decide how and when to jump aboard. I feel frightened and confused a lot of the time, like you would if you landed on an alien planet and didn't understand how the inhabitants communicated. This is why I need to have things the same as much as possible. Once I learn how things happen, I can get by okay. But if something, anything changes, then I have to relearn the situation all over again! It is very hard.
When you try to talk to me, I often can't understand what you say because there is a lot of distraction around. I have to concentrate very hard to hear and understand one thing at a time.
You might think I am ignoring you, I am not. Rather, I am hearing everything and not knowing what is most important to respond to. Holidays are exceptionally hard because there are so many different people, places and things going on that are out of my ordinary realm. This may be fun and adventurous for most people, but for me, it's very hard work and can be extremely stressful.
I often have to get away from all the commotion to calm down. It would be great if you had a private place set up to where I could retreat. If I cannot sit at the meal table, do not think I am misbehaved or that my parents have no control over me. Sitting in one place for even 5 minutes is often impossible for me. I feel so antsy and overwhelmed by all the smells, sounds, and people--I just have to get up and move about. Please don't hold up your meal for me, go on without me and my parents will handle the situation the best way they know.
Eating in general is hard for me. If you understand that autism is a sensory processing disorder, it's no wonder eating is a problem! Think of all the senses involved with eating: sight, smell, taste, touch AND all the complicated mechanics that are involved with chewing and swallowing that a lot of people with autism have trouble with. I am not being picky. I literally cannot eat certain foods as my sensory system and/or oral motor coordination are impaired.Sometimes, I may even become nauseated.
Don't be disappointed if mommy hasn't dressed me in starch and a tie. It's because she knows how much stiff clothes can drive me buggy! I have to feel comfortable in my clothes or I will just be miserable! Temple Grandin, a very smart adult with autism, has taught people that when she had to wear stiff petticoats as a child, she felt like her skin was being rubbed with sandpaper. I often feel the same way in certain clothes.
When I go to someone else's house, I may appear bossy and controlling. In a sense, I am being controlling because that is how I try to fit into the world around me (which is so hard for me to figure out!) Things have to be done in a way I am familiar with or else I might get confused and frustrated. It doesn't mean you have to change the way you are doing things just please be patient with me and understanding of how I have to cope...mom and dad have no control over how my autism makes me feel inside.
People with autism often have little things that they do to help themselves feel more comfortable. The grown ups call it "Self regulation," or "stimming'. I might hum, flick my fingers in my face; repeat things over and over or any number of different things. I am not trying to be disruptive or weird. Again, I am doing what I have to do for my brain to adapt to your world.
Sometimes I cannot stop myself from talking, singing, or partaking in an activity. The grown ups call this "perseverating" which is kind of like self regulation or stimming. I do this only because I have found something to occupy myself that makes me feel comfortable, and I don't want to come out of that comfortable place and join your hard-to-figure-out-world. Perseverative behaviors are good to a certain degree because they help me calm down. Please be respectful to my mom and dad if they let me "stim" for awhile as they know me best and what helps to calm me.
Remember that my mom and dad have to watch me much more closely than the average child. This is for my own safety, preservation of your possessions, and to facilitate my integration with you. It hurts my parents' feelings to be criticized for being over protective or condemned for not watching me close enough. They are human and have been given an assignment intended for saints. My parents are good people and need your support.
Holidays are filled with sights, sounds, and smells. The average household is turned into a busy, frantic, festive place. Remember that this may be fun for you but it's very hard work for me to conform. If I fall apart or act out in a way that you consider socially inappropriate, please remember that I don't possess the neurological system that is required to follow your rules.
I am a unique person--an interesting person. I will find my place at this celebration that is comfortable for us all as long as you'll try to view the world through my eyes!"
I had no idea! I guess he got his pictures from the NAA Website. I agree. It
was quite touching! I'm going to try to get our local station to play his
music. I encourage everyone to contact their local country stations and
encourage them to play "Missing Pieces" to raise awareness about autism.
Christi
---- Mike and Missy lasater <m_lasater@...> wrote:
I just have to say how great tonight's Bartlesville meeting was! I
feel so refreshed. It's always nice to talk to others and get new
perspectives. It's also nice to share the laughs and the tears...I'll
try to post more in the mean time in between the meetings. It's
amazing what a few kind words can do to someones motivation!
This was so neat. I had my whole family in here watching the video...and I was in tears! What a precious picture of Landon. Did you not know about it? What a precious surprise for you...and such a neat way to raise funds for Autism research. See ya this week, Missy
From: michael dollarhide <msdollarhide@...> Reply-To: easternokautism@yahoogroups.com To: easternokautism@yahoogroups.com Subject: Re: [easternokautism] Song about autism Date: Thu, 5 Oct 2006 20:36:00 -0700 (PDT)
DEAR CHRISTI,
WOW! I LOVE IT! IS LANDON'S PICTURE ONE OF THE LAST ONES THAT COMES UP IN THE FIRST GROUP OF PICS? TOWARD THE MIDDLE? HOW DID THEY GET HIS PICTURE? HOW EXCITING! I'M GONNA PASS THIS ON!
LOVE YA! GINA
christi-kellogg@cox.net wrote:
Oh....my gosh!!! I was crying as I watched this video, then I really lost it! I looked up and saw my son Landon's picture on the video! I can't believe it!!! HE is the blond boy in the black and white picture! Thanks Cheryl for sending this out! Christi ---- Cheryl <albummaker@petsinblack.com> wrote: > Hi Everyone, > > This is by Mark Leland and is called "Missing Pieces". PLEASE check > it out! > > Needless to say, brought tears to my eyes. > > Go to this site : http://www.frinkfes <http://www.frinkfest.com/> > t.com/ and > click on the play button on the right hand side > > Here is an excerpt from his bio on Mark Leland's website and the > reason behind writing this song. > > The largest motivation behind this CD is the title track, "Missing > Pieces". Leland's manager and long time friend, Tim Calhoun, is the > father of Nathaniel, the inspiration for this song. Nathaniel, like > 1.7 million other children, is autistic. After listening to the > stories of the challenges that families face in receiving treatment > for their children diagnosed with autism and watching the pain his > close friend was facing, Leland began to learn more and more about > autism. Together, Calhoun and Leland wrote "Missing Pieces". It is a > touching song that takes a listener through the anguish of having a > beautiful baby whose neurological sense become challenged in the > first few years of life. The autism community faces a constant > struggle of learning about the causes of this terrible disease and > the ever-changing ideas on effective treatment. > > The philanthropic loyalty that Leland has towards helping this often > unnoticed group of dedicated parents has been the basis of his > decision to donate a portion of the proceeds from the sale of his > Missing Pieces CD to organizations that can assist families in > affording the treatment needed to help their autistic children > succeed. As the song "Missing Pieces" is being played more and more, > Leland is frequently asked to perform at autism benefits across the > country. Parents of autistic children who have heard his song are > sharing his enthusiasm with other members of their community. > Together, Leland and his fans are spreading autism awareness across > the nation and possibly, the world. > > > > > > >
--
It's toward the end, (on the part where the pictures come up) and
shows up on the left hand side. The National Autism Association
must have given it to him, as it is on their Wall of Hope. I'm
going to see if I can get a copy of the video when it's released.
I'm also going to check and see if the local station can play his
song and do some autism awareness activities. If any of you know
people at local country stations, please call them and encourage
them to play this song!
Christi
- In easternokautism@yahoogroups.com, michael dollarhide
<msdollarhide@...> wrote:
>
> DEAR CHRISTI,
>
> WOW! I LOVE IT! IS LANDON'S PICTURE ONE OF THE LAST ONES THAT
COMES UP IN THE FIRST GROUP OF PICS? TOWARD THE MIDDLE? HOW DID
THEY GET HIS PICTURE? HOW EXCITING! I'M GONNA PASS THIS ON!
>
> LOVE YA! GINA
>
> christi-kellogg@... wrote:
> Oh....my gosh!!! I was crying as I watched this video,
then I really lost it! I looked up and saw my son Landon's picture
on the video! I can't believe it!!! HE is the blond boy in the black
and white picture! Thanks Cheryl for sending this out!
> Christi
> ---- Cheryl <albummaker@...> wrote:
> > Hi Everyone,
> >
> > This is by Mark Leland and is called "Missing Pieces". PLEASE
check
> > it out!
> >
> > Needless to say, brought tears to my eyes.
> >
> > Go to this site : http://www.frinkfes
<http://www.frinkfest.com/>
> > t.com/ and
> > click on the play button on the right hand side
> >
> > Here is an excerpt from his bio on Mark Leland's website and the
> > reason behind writing this song.
> >
> > The largest motivation behind this CD is the title
track, "Missing
> > Pieces". Leland's manager and long time friend, Tim Calhoun, is
the
> > father of Nathaniel, the inspiration for this song. Nathaniel,
like
> > 1.7 million other children, is autistic. After listening to the
> > stories of the challenges that families face in receiving
treatment
> > for their children diagnosed with autism and watching the pain
his
> > close friend was facing, Leland began to learn more and more
about
> > autism. Together, Calhoun and Leland wrote "Missing Pieces". It
is a
> > touching song that takes a listener through the anguish of
having a
> > beautiful baby whose neurological sense become challenged in the
> > first few years of life. The autism community faces a constant
> > struggle of learning about the causes of this terrible disease
and
> > the ever-changing ideas on effective treatment.
> >
> > The philanthropic loyalty that Leland has towards helping this
often
> > unnoticed group of dedicated parents has been the basis of his
> > decision to donate a portion of the proceeds from the sale of
his
> > Missing Pieces CD to organizations that can assist families in
> > affording the treatment needed to help their autistic children
> > succeed. As the song "Missing Pieces" is being played more and
more,
> > Leland is frequently asked to perform at autism benefits across
the
> > country. Parents of autistic children who have heard his song
are
> > sharing his enthusiasm with other members of their community.
> > Together, Leland and his fans are spreading autism awareness
across
> > the nation and possibly, the world.
> >
> >
> >
> >
> >
> >
> >
>
I was watching my favorite TV show, the Ghost Whisperer. The main
character was trying to communicate with a ghost and couldn't figure
out why he wouldn't communicate back. I told my husband, "He has
autism." Turned out that I was right. The entire show focused on
autism and at the end of the show they gave a website for more
information on autism. It was www.thehelpgroup.org. Be sure and check
it out.